$225 – $295

Equitable Access to Rare Disease Therapies Workshop

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Squire Patton Boggs

2550 M Street, NW

Washington, DC, 20037

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Refunds up to 30 days before event

Eventbrite's fee is nonrefundable.

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With just 5% of the over 7,000 rare diseases addressed by some form of drug treatment, 95% of rare diseases remain without a therapeutic option. Rare diseases affect 1 in 10 Americans, yet many of these debilitating conditions impact a very small number of patients. The biopharmaceutical industry is delivering tremendous innovation, from disease-modifying medications to curative gene therapies, to address previously unmet medical needs. It is imperative that these innovations be accessible to those who deserve them. This workshop brings together patients, families, patient advocacy groups, biopharmaceutical firms, providers, policymakers, and other NGOs to discuss how to achieve equitable access to care for rare diseases. Topics will include current barriers to care, ensuring earlier access, and drug pricing. Our goal is to empower patients and families who are affected by rare diseases.

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Date and Time

Location

Squire Patton Boggs

2550 M Street, NW

Washington, DC, 20037

View Map

Refund Policy

Refunds up to 30 days before event

Eventbrite's fee is nonrefundable.

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