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Consumer Medical Update
Sat, March 25, 2017, 8:00 AM – 5:00 PM EDT
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To recognize March as Bleeding Disorders Awareness Month, we will be holding an important one-day Consumer Medical Update in Portsmouth, NH on March 25, 2017.
The goals of this meeting are to provide consumers in the New England bleeding disorders community with the foundation and tools to discuss the potential treatments currently in clinical trials (subcutaneous injections and gene therapy), to have conversations around future insurance barriers to these treatments, and what the psychosocial implications may be to patients.
Childcare will not be provided at this event and the content will be tailored for teenagers (ages 18+) and adults. If your teenager/child is under the age of 18 and would like to attend this event, please contact us at: firstname.lastname@example.org
Please note that registration will close on Friday, March 11.
Frequently Asked Questions:
Q. Do you have a room block
Our room block is now closed. You can call the Sheraton Portsmouth Harborside Hotel to see if there are other rooms avaliable at 603-431-2300.
Q. How much does it cost?
Registration is free for NEHA members, and only $10 a person for any non-member. Click here to become a 2017 member. Please note, if you are registered but can no longer attend, please notify us immediately. If a cancellation occurs within 72 hours of the event, you will be charged with a $30 fee.
Q. Does NEHA offer financial assistance?
Yes! If you are need of financial assistance, we can with help travel costs to and from the conference through our "100 for 100" program. A $100 lodging subsidy can be offered to anyone traveling more than 100 miles roundtrip to Burlington. You must reserve and pay for your hotel room(s), and then provide NEHA with a receipt and proof of the 100 miles driven. A check for $100 will be mailed out after the event.
Q. Will there be childcare or a young adult track?
No. Since this event is tailored for adults to learn about new treatments, childcare and a teen track will not provided.
Q. Is this Medical Update replacing SpringFest?
Yes, only in 2017. NEHA is holding the Medical Update in lieu of SpringFest, and then partnering with the Hemophilia Federation of America (HFA) for their annual Symposium in Providence, RI on April 6-9, 2017. At this event, childcare, a youth program, and teen track will be offered. If you are a 2017 member of NEHA, you have access to hotel scolarships for this national conference. To learn more, contact Rich Pezzillo at: RPezzillo@nehemophilia.org
Q. How do I learn more about NEHA?
Go to www.newenglandhemophilia.org or call us at 781-326-7645.