ROOM BLOCK RATE ENDED. Need lodging? Add your name to the waitlist. Include check in and check out dates and best number to contact you. Email Waitlist
Early Morning Walk for a Cure
Join us for an early morning walk on the beautiful beach at the Diplomat Hotel. Shed those winter blues and take advantage of one of nature’s best medicines – Walking. Early morning walks are the best. Take in fresh oxygen to calm agitated nerves from traveling. Escape for a few days and feel your mind, body and soul embrace the healing power of the ocean.
When: Saturday, April 11, 2015 at 5:30 AM Eastern.
Meeting Location: Beach, Diplomat Hotel (exit the lobby rear of the hotel)
Walk for a Cure Initiators
Kalpna Gupta and I want to start a walking tradition at the Symposium: “Walk for a Cure for Sickle Cell Disease.” Every cure needs funding. We are grateful to those who will walk with us and donate $25. You can add the “Walk for a Cure” to your existing registration.
The Foundation for Sickle Cell Disease research is a good steward of all generous donations. We have provided funding towards the purchase of AED’s, student research in sickle cell disease in the US and Internationally, support patient attendance to symposia and implemented surveys such as Antibiotic Usage in the Sickle Cell Population and Social Security Disability Evaluation Questionnaire. There is still time to complete these surveys. Just click the survey title to begin.
Kalpna and I hope you will join us!!
With kind regards,
Lanetta and Kalpna
ACITIITIES AROUND TOWN Click How to Play for more information
2015 SYMPOSIA AND SCIENTIFIC ATTENDEES TRAVEL ORIGINATION
Saturday, April 11, 2015 - Doors Open at 4:00 PM
Ticket item: $25
"1 agent cannot do it all
Message to NIH and FDA: Approve drugs! Funds for trials!” Susan Perrine, MD
The 9th Annual Sickle Cell Disease Research and Educational Symposium and 38th Annual Sickle Cell Disease Scientific Meeting presents the 3rd Investigational Drug Symposium (IDS) on Sunday, April 12, 2015 at 3:45 PM. The two hour symposium is chaired by Susan Perrine, M.D., Professor of Pediatrics, Medicine, Pharmacology and Experimental Therapeutics at Boston University School of Medicine. The IDS will discuss clinical endpoints using recent therapeutics as examples, refined formulations, conversations with the FDA about higher hemoglobin not always a benefit, development of targeted therapeutcis to correct polymerization, vascular adhesion, inactivation of inflammatory targets, and much more!
Susan Perrine, M.D.
Chair, 3rd Investigational Drug Symposium
Director, Center for Hemoglobin Research in Minorities, Howard University College of Medicine, & Director, Hemoglobinopathy Thalassemia Research Unit, & Professor, Medicine, Pediatrics, Pharmacology and Experimental Therapeutics, Boston University School of Medicine
Title: From Bench to Bedside: Challenges of Clinical Trials in Globally Diverse Patients
Following Dr. Perrine is a dynamic panel of researchers and experts in the therapeutics field including. The panel lineup is as follows:
Helen Thackray M.D.
Title: “Defining Clinical Benefit in Sickle Cell Anemia: Results From the Rivipansel (GMI-1070) Phase 2 Program”
Yogen Saunthararajah, M.D.
Title: Epigenetic Therapy with Oral THU-Decitabine for Sickle Cell Disease
Abdullah Kutlar MD
Title: Imids as HbF inducers: results of a Phase I trial
Kenneth Ataga M.D. and Carlo Brugnara, M.D.
Title: Senicaproc: Successful Targeting of an Ion Channel, Challenges of Clinical Endpoints
Carlo Brugnara, M.D.
American Journal of Hematology
Title: Epic Considerations for the EPIC Clinical Trial
Yutaka Niihara M.D., M.P.H.
Title: L-glutamine therapy for sickle cell anemia
Greg Kato M.D.
Title: Sodium Nitrite for Leg Ulcers in Sickle Cell Disease: Safety, Tolerability, and Preliminary Efficacy Results
International East Meets West Symposium
East meets West will explore the current situation of the care of Sickle Cell Disease patients in the developing world, especially Africa, and identify areas of need and potential collaboration between experts in the East and the West. Emphasis will be on issues surrounding the following: Newborn Screening, Primary/Community Care for Sickle Cell Disease and Accessibility to hydroxyurea and barriers to its use.
Patients and Families Don't Want to Miss: Understanding Blood Products
Araba Afenyi-Annan, MD, MPH, SCD Guidelines Expert Panel Member
Goal: Increase patient knowledge and understanding of the blood they are receiving to advocate for their own medical care when seen at a hospital other than a sickle cell center.
Focus: Knowledge and understanding of transfusions for patients and parents about the blood products they receive. Understanding matched blood, the long term risks of chronic transfusions, logistics required by the blood center/hospital to obtain matched blood, and the cost to patients.
Internet Access: $20 per day: Includes room and meeting space
Parking: Overnight: Valet $20 per day Self Parking: $15 per day
Guests not staying at the hotel: $14 per day/Self Paking
MANUSCRIPT SUBMISSION are accepted contiuously
Manuscript fee is $120 and is non-refundable.
Journal Submission Website
Journal of Sickle Cell Disease and Hemoglobinopathy Editorial Manager
Submit an Abstract/Manuscript
Sickle Cell Research Society of America (SCRSA) - Membership
Members - Login to your account to retrieve your promotional code. Member Login
Exhibit setup - April 10, 2015
Exhibit Display - April 11 - 12, 2015
Are there ID requirements or an age limit to enter the event?
You may be asked for student ID if you registered as a student.
What are my transport/parking options getting to the event?
You should fly in Fort Lauderdale International Airport. Taxi's and Vans are always available. We also have private care service available. Contact the Organizer to arrange for "Private Transportation." Indicate "Private Transportation" in the subject line.
Where can I contact the organizer with any questions?
Click Contact the Organizer
Is my registration/ticket transferrable?
Yes registrations are transferrable.
Can I update my registration information?
You can log into Eventbright to update your registration information.
Do I have to bring my printed ticket to the event?
No, but you may need your proof of registration to submit for reimbursement.
What is the refund policy?
No. You will need to have a matched registration ticket for the acutal attendee.
Can I register a group of people?
If you’re just looking to register a group of people all at once, simply select the number of tickets you need from the event registration. You may be prompted to provide ticket holder for each person you’re registering for.
Next year marks the 10th Anniversay of the Sickle Cell Disease Research and Educational Symposium
What we do:
In order to purchase these tickets in installments, you'll need an Eventbrite account. Log in or sign up for a free account to continue.