$40 – $60

Chicago Sarcoidosis Patient Education Summit

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Location

DoubleTree by Hilton Hotel Chicago - Magnificent Mile

300 East Ohio Street

Chicago, IL 60611

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Eventbrite's fee is nonrefundable.

Event description
FSR Sarcoidosis Patient Education Summits are a valuable educational resource for those living with sarcoidosis and their caregivers.

About this Event

FSR's weekend-long summits will provide presentations from expert physicians and researchers, as well as lectures and exercises in lifestyle, emotional well-being, legal and financial matters, and FSR resources. Attendees will be able to choose which presentations to attend based on which are the most relevant to their lives.

There will also be a self-care station and ample opportunities for attendees to relax and recharge between sessions.

Sample agenda:

Friday

4:30-7:00 PM TBD Kick off event (PROPOSED TBD)

Saturday

7:30-8:30 AM Registration/Breakfast

8:30-9:00 AM Plenary Session: FSR

9:15-10:15 AM (Choose one)

  • Is it sarcoidosis? When and how to figure out if you have sarcoidosis?
  • Advanced Sarcoidosis (cardiac, neuro, and advanced pulmonary)
  • Navigating Insurance : The Basics, what you need to know

10:15-10:30 Break

10:30-11:30 AM (Choose one)

  • Monitoring: what you need to know
  • Brain Fog: Can Anything be Done About It?
  • Nutrition

11:30 AM – 12:30 PM (Choose one)

  • Why does my doctor always want to give me prednisone?
  • Other Manifestations of Sarcoid (GI, Bone/Joints, Ocular, Skin)
  • Be Heard: Communicating with your medical team

12:30 – 1:30 PM Lunch /Networking

1:30 – 2:30 PM (Choose one)

  • What are the alternatives to prednisone?
  • Exercise
  • Monitoring: What you need to know

2:30 -3:00 PM Self-Care Break

3:00 – 4:00 PM Plenary: The Research Wheel: How You Can Help Research Move Forward

4:00 – 5:00 PM (Choose one)

  • Navigating Personal relationships
  • Overwhelmed: How to cope with the emotional fall-out of sarcoidosis (Warriors)
  • Overwhelmed: How to cope with the emotional fall-out of sarcoidosis (Caregivers)

5:00 – 5:30 PM Ballroom A Closing

Sunday

8:00 – 8:45 AM Breakfast

8:45 – 9:30 Patient Speaker Panel: Topics vary

9:30 – 10:30 AM (Choose one)

  • Depression & Anxiety
  • Disability & Employment Rights
  • Exercise

10:30 – 11:00 AM Self-care Break

11:00 AM – 12:00 PM (Choose one)

  • Self-Care & Chronic Stress
  • Managing Chronic Fatigue
  • Navigating Off-Label Drugs

12:00 -1: 00 PM Lunch/Final Speaker/Session TBD

1:00 – 1:30 PM Closing

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Date and Time

Location

DoubleTree by Hilton Hotel Chicago - Magnificent Mile

300 East Ohio Street

Chicago, IL 60611

View Map

Refund Policy

Contact the organizer to request a refund.

Eventbrite's fee is nonrefundable.

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