Join the St. Louis Fetal Care Institute and CHERUBS for the first annual Parade of Cherubs to raise awareness about Congenital Diaphragmatic Hernia (CDH) on April 19, 2012. Families and friends who have been impacted by CDH will come together to build awareness about this birth anomaly that is just about as common as spina bifida and cystic fibrosis, and effects thousands of families every year.
At 6:30 p.m. everyone is encouraged to meet for a cake and punch reception in the lobby of SSM Cardinal Glennon Children's Medical Center (1465 S. Grand Blvd.• Saint Louis, MO 63104) to meet other CDH families. At 7:15 p.m. the Parade of Cherubs will start in the lobby and end at the outdoor verandah of the hospital along Grand Blvd. Following the parade a short candle light ceremony in honor of all those touched by CDH will be held, then a lighted balloon release in memory of all those who have earned their wings will conclude the event.
Cake and punch reception in the lobby atrium of SSM Cardinal Glennon Children's Medical Center
Participants will have the opportunity to sign and decorate our CDH Awareness banner
Candles and wings distributed
CDH Awareness March from the lobby atrium to the outside verandah of Cardinal Glennon
Participants arrive at verandah of Cardinal Glennon
LED candles and glow sticks turned on
Dr. Yang thanks everyone and speaks to the importance of CDH Awareness
CDH parents will read facts about CDH
A CDH Mom will say a short poem or prayer
The children will release the balloons
Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate!
I'm a real live cherub but I don't have wings When I was a baby the doctor had to fix things My tummy was in my chest and it was hard to breathe He put it all back and here's where he fixed me!
Congential Diaphragmatic Hernia Research Bill
In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.
Sponsor - Sen. Jefferson Sessions
CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness & Support
CHERUBS is a 501(c)III organization located in North Carolina. CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH). As of 2015, we have over 5000 members in all 50 states and 60 countries. Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH. We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.
What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. The cause is not yet known.
Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.
CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.