CA$110 – CA$220

Canadian National SMA Conference

Event Information

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Location

HYATT REGENCY TORONTO

370 King Street West

Toronto, ON M5V1J9

Canada

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Eventbrite's fee is nonrefundable.

Event description
Knowledge is power! Learn about the latest and greatest in Spinal Muscular Atrophy research, treatment and care. Network with others!

About this Event

Thank you to our generous sponsors who made this conference possible!

Biogen, Novartis and Roche are our Diamond Sponsors.

Agenda Overview

  • Newly Diagnosed Informational Session
  • SMA Adult Patient and caregiver informational session
  • Canadian Research Projects
  • Why continue research – funding even though “we have treatment”
  • Latest Medical information
  • Treatment access information Spinraza, Zolgensma, Risdiplam
  • Clinical Trial updates
  • Newborn Screening
  • Canadian Pharmaceutical Access and Process
  • SMA Past Present Future
  • Rare Disease Strategies
  • Speaker Panel – The Emotional Roller Coaster of Progression
  • Speaker Panel – Live with Treatment – sharing experiences
  • Speaker – SMA Family Camp – Fun Family Support
  • Speaker Panel – Nutrition, PT, Orthopedic, mental health
  • Advocacy Anxiety – the wait
  • Life with treatment – not a perfect world
  • Speaker Panel – Keeping Positive – “Every day is a Good Day”
Share with friends

Date and Time

Location

HYATT REGENCY TORONTO

370 King Street West

Toronto, ON M5V1J9

Canada

View Map

Refund Policy

Contact the organizer to request a refund.

Eventbrite's fee is nonrefundable.

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