$20

Bootcamp & Brew for Action for Aidan

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Location

Deciduous Brewing Company

12 Weaver Street

Newmarket, NH 03857

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Refund Policy

Refund Policy

No Refunds

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Event description

Description

This event starts at 12:00p.m. with a 45-minute all-levels Bootcamp Blast class taught by Pamela Hollasch. Afterwards, we will relax and socialize with one full pour of beer from Deciduous Brewing Company (included in entry).

All admission costs go to Action for Aidan (www.actionforaidan.org), a non-profit charity established to fund research for treatments and a cure for Hunter Syndrome. Also, from 1:00p.m. to close, Deciduous will donate a portion of their proceeds to Action for Aidan.

Aidan Carter is a fourth grader at Stratham Elementary School who was diagnosed with Hunter Syndrome at 15 months old. Hunter Syndrome (MPSII) is a rare, progressive genetic disorder with approximately 2,000 boys afflicted in the world today. In the most common, severe form of the disease, death occurs by the second decade of life. These boys are born lacking a critical enzyme that clears cellular waste from their bodies. Children appear normal at birth, but as the cellular waste accumulates enlarged skulls, heart defects, difficulty breathing, joint contractures, hydrocephalus, nerve conduction disease, enlarged organs, hearing loss, recurrent infections, and more develop.

There is no cure for Hunter Syndrome. Presently, the only FDA approved medication, Elaprase, is given weekly as a 4-hour infusion. Elaprase helps stabilize some of the physical symptoms of the disease but it does not help with many of the other complications including but not limited to cognitive slowing, hearing loss, spinal cord damage, bone disease, and more.


FAQs

Are there ID or minimum age requirements to enter the event?

You must be 21 or older to attend.

What can I bring into the event?

Please bring your ID and a water bottle.

How can I contact the organizer with any questions?

pjhollasch@gmail.com

What's the refund policy?

As this is an event for charity, no refunds are possible; however, your entry is transferable.

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Date and Time

Location

Deciduous Brewing Company

12 Weaver Street

Newmarket, NH 03857

View Map

Refund Policy

No Refunds

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