$10 – $15

Big Wow Los Angeles-Stefanie

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Holleigh Bernson Memorial Park

(Sesnon Park)

20500 Sesnon Blvd

Porter Ranch, CA 91326

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Wilson's disease is a rare genetic disorder that leads to copper poisoning in the body, resulting in liver and neurologic disease. Untreated, it is fatal. However, if diagnosed and treated early, people with Wilson's disease can lead normal productive lives!

I am excited to be a part of the big WOW to build awareness and raise needed funds for research of Wilson’s disease. This disease hit home with me when my three nephews were diagnosed with WD. The oldest of the three, Nicolas, was hospitalized in December of 2012 and almost died with liver and bone marrow failure. Six months later, he was diagnosed with liver cirrhosis from Wilson’s disease. He was 16 at the time. Shortly after, his younger twin brothers were diagnosed with WD and had low grade hepatitis at the time. Since diagnosis they have experienced improvements with treatments but have had challenges as well. It will be an honor for me to initiate the big WOW in the Los Angeles area and partner with others in bringing about much needed awareness of this deadly disease. Because of lack of awareness, many WD patients go undiagnosed until it is too late to correct the damage. We want to get the word out and do whatever research is needed to conquer this illness! That is why I have two eventbrite pages featuring 2 remarkable women.

Come join us at 8:30 for a bagel, and water, coffee and juice. Sesnon Park has a sidewalk around the perimeter of the park which is about 1/4 mile. It's a perfect setting for a morning walk while raising awareness and funds for wilson's Disease. There are restrooms and recreational facilities as well.

Dogs Allowed (Y/N): Yes

Public Restrooms available: Yes

Handicap accessible

Our event will be held rain or shine.

For questions please contact: mrscasillas6vps@gmail.com

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Date and Time

Location

Holleigh Bernson Memorial Park

(Sesnon Park)

20500 Sesnon Blvd

Porter Ranch, CA 91326

View Map

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