The Sickle Cell Anemia Foundation of Oregon will host the 9th installment of "Walk A Milke For Sickle Cell", a run, bike and walk-a-thon on September 18th during National Sickle Cell Awareness Month. This is our largest fundraiser of the year and we need your help in raising money to support Oregon families impacted by Sickle Cell and to bring much needed awareness about SIckle Cell.

Join us and "Walk A Mile For Sickle Cell". Can't make it to the walk in-person, that is okay, donations are being accepted, any amount is appreciated and we are also accepting sponsors at each sponsorship level.

Sponsored by Vertex. Visit the Vertex Website to learn about their latest research into Sickle Cell Disease (SCD) including investigate the use of gene-editing technology, known as CRISPR-Cas9, to discover and develop a new potential one-time treatment for SCD.

Other sponsors include J.D. Hall & Associates, LLC, East Metro STEAM Foundation, Albina Christian Life Center.

What is Sickle Cell Disease?

Sickle Cell Disease (SCD) is an inherited blood disorder that affects over 100,000 Americans — and millions worldwide. SCD is often identified with African Americans, but it also frequents people of South Asian, Middle Eastern, Hispanic, and Mediterranean descent. According to the CDC, approximately 1% of children with SDC will die within the first 3 years of life — often from stroke and without warning. Some two million Americans are carriers of the sickle cell gene.

The Sickle Cell Anemia Foundation of Oregon is a 501(c)(3) non-profit organization dedicated to educating vulnerable populations and to encourage testing for the presence of this painful and life-threatening, but treatable disease.

Our immediate objective is to identify all the patients and carriers of sickle cell disease living in Alaska, Idaho, Oregon, and Washington state. We are dedicated to assessing the health care needs of these patients and helping them by facilitating regular access to appropriate health care providers and services. Our Pacific Northwest outreach program aims to provide individuals with the information they need to be tested for the presence of sickle cell disease. Diagnosed patients are encouraged to sign up with the national “Get Connected” Sickle Cell Anemia registry.

 For more infomation about the Sickle Cell Foundation of Oregon, visit us at https://sicklecelloregon.org/