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4th Annual Tee Off for EoE Golf Outing
Sun, June 4, 2017, 9:00 AM – 5:00 PM EDT
Join us for the 4th ANNUAL TEE OFF FOR EOE GOLF OUTING at Lake Cora Hills Golf Club - 9:00am Shot Gun Start Registration opens at 8:00am
Thank you to our returning Platinum Sponsor Tournament highlights include:
Teams of 4
$80.00 per Golfer / $285.00 Foursome
Refreshments at the turn
Light fare after the tournament
Awards ceremony from tournament competitions
Elizabeth Lee's Journey in her own words:
"My inspiration to host this event goes beyond my personal experience with EoE & my son Korbin. Raising awareness and funds for Eosinophilic Esophagitis and other related disorders has become a priority in my life. I am experiencing the rollercoaster in the life of EoE and I have been touched by countless families that have experienced more loops in their rollercoaster than I could imagine, of which there is no end in sight. Here's my story:
Korbin was diagnosed with EoE just before he turned two. He has had 8 scopes and had his first normal/clean scope the day before his 5th birthday and you better believe we celebrated! All proceeding scopes he had inflammation and high levels of Eosinophils present. Korbin's treatments started with a strict 6 food elimination diet, soon followed by 8 foods totally eliminated along with an Amino-based formula for nutrition and optimal caloric intake. With little to no improvements in his esophagus, we started treating with a steroid slurry for nearly 2 years. Still with no normal scopes we were advised to seek a 2nd opinion at Cincinnati Children's Hospital. Scope #6 was performed and his esophagus was the worst yet. We ended the steroids and again began the 6FED, but after 3 months on the diet and an acid suppressor scope #7 was still abnormal.
In order to avoid the risk of significant scarring and permanent damage to his esophagus, we were advised and chose to have a feeding tube placed. This meant big life changes; surgery with a semi-permanent button, an elemental diet in which he could not consume anything but artificial flavors and sugars (dum-dum suckers, blue or green baby bottle pops, some fruity candy canes, Watermelon-only flavored Koolaid Jammers and a few other selected "junk" food/beverages). All nutrition provided through the tube with the amino based formula. Despite the few "food sneakings", thousands of tears wishing he could just eat and an obsession with smelling food, Korbin stayed strong & continued to do everything plus some that every 5yr old does. He's my soldier boy. Since Korbin is in preschool all day, Josh & I take turns ensuring Korbin gets 2 tube feeds while at school.His teachers have been amazing support to make sure he ease him when he feels left out or uncomfortable. When it was hard for Korbin to sit at the table and eat his dum dum while the class ate their lunch, he chose to help do little tasks in the classroom and he was/is proud to be a helping hand. After 4 straight months with nothing but sugar by mouth, he went under for his 8th scope and by the grace of God & the strength of my little man he had his FIRST CLEAN scope!
Let the food trials begin, four fruits &/or vegetables for trial 1. Currently he is eating applesauce, apple slices, apple juice, grapes (seldom) and grape juice almost regularly. Ideal daily minimum during a trial is 2 tablespoons daily for the duration of the trial (around 3-4 months). He has tried strawberries, broccoli, carrots and sweet potatoes, however refused to stick with any of these consistently so they are omitted from the trial at this point.
The treatments are trial and error, the monitoring can only be seen by endoscopy with biopsies, long term effects and prognosis is unknown and THERE IS NO CURE. I will continue to do my due diligence in fighting this disease for Korbin and all of our EGIDs community; the patients, their families and caregivers.
Thank you for your continued love and support"
The funds raised from this event will go to The American Partnership for Eosinophilic Disorders (APFED) HOPE on the Horizon Research Fund.
APFED is a non-profit advocacy organization for those living with eosinophilic esophagitis, eosinophilic gastroenteritis, eosinophilic colitis, hypereosinophilic syndrome, and other eosinophilic disorders. They are a resource for patients, their families, physicians and the medical community. To learn more about APFED you can visit www.apfed.org.