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3rd Annual Rett Clinic Family Symposium

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Children's Hospital Colorado Conference Center - Mt. Yale

13123 E 16th Ave

Aurora, CO 80045

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Children’s Hospital Colorado Rett Clinic invites you to attend the 3rd annual Rett Clinic Family Symposium September 15th, 2018 from 8:30am- 2:30pm. This is an annual event for families and medical providers to learn how to better care for a child with Rett Syndrome and Rett-Like Disorders (CDKL5, FOXG1, MECP2-Duplication/Triplication and all other MECP2 mutations).

The focus of this year’s symposium is “Real Help for Real Life”. We have expert therapists and providers coming in to speak on how to provider better therapy at home, in school and communicate in ways that fit both you and your child. We will have an update on research and science as well as a discussion on how to handle social media in the real world.

Our goal is to give every person a better understanding on how to provide a better living environment for people that attend our clinic- we hope to provide direction for our patients of all ages.

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About the Rett Clinic

The Rett Clinic at Children’s Hospital Colorado was established thanks to a generous gift from the Rocky Mountain Rett Association, which officially started in December 2011. We are recognized as a Rett Syndrome Clinical Research Center of Excellence and a member of the Rett Consortium by Rettsyndrome.org as well as a CDKL5 Center of Excellence by the International Foundation for CDKL5 Research. Our services include consultation and evaluation for all people with Rett Syndrome and genetically related disorders (MeCP2 changes, CDKL5, FOXG1 and others) to ensure they are receiving the needed therapies, treatments and services to live a quality life. We serve people for the entirety of their life. Our goal is to provide the best consultative care and therapeutic advice for individuals with Rett Syndrome, MeCP2 Duplication/Triplication, CDKL5, FOXG1 and other Rett like mutations; we also strive to provide up-to-date information on these disorders to parents, physicians, therapists and care providers; participate in ground-breaking clinical research trials and work as a team with the family and the primary care providers.

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Date and Time

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Children's Hospital Colorado Conference Center - Mt. Yale

13123 E 16th Ave

Aurora, CO 80045

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