3rd Annual

New Directions in Fragile X Conference

Fragile X Across the Life Span 

Behavioral and Educational Strategies, Peer Relations and Adult Options 

Featured Speakers: 

Dr. Marcia L. Braden, Ph.D., P.C.  

Www.MarciaBraden.com, Colorado Springs, CO

Dr. Braden is a licensed psychologist with a clinical practice specializing in children and adolescents. She is a former teacher with experience teaching general and special education. She has written and published numerous articles related to education and behavior management strategies, techniques, and interventions. She is a contributing author to the book Fragile X Syndrome; Diagnosis, Treatment, and Research, compiled and edited by Randi and Paul Hagerman and Children with Fragile X Syndrome: A Parent’s Guide, edited by Jayne Dixon Weber. She is the author of Fragile – Handle With Care: More About Fragile X Syndrome.

Dr. Braden is a member of the Scientific and Clinical Advisory Board to the National Fragile X Foundation and is a member of the Advisory Committee for the HillSprings Learning Center.

Dr. Braden frequently consults with parents, therapists, educators, and medical staff about effective treatments. Respected for her work internationally, she has presented at numerous conferences and workshops about Fragile X syndrome, autism, and other related disorders

Holly Usery-Roos 

NFXF Community Support Network Coordinator, Mother of two w/ FXS, Canton, IL 

Ms. Usrey-Roos is the LINKS Program Coordinator started out at the LINKS program assistant for the National Fragile X Foundation in 2010 and became the LINKS program coordinator in the fall of 2012. She has two children, a son and a daughter, with fragile X syndrome. In 2006 she founded The Central Illinois Fragile X Resource Group to bring families together and raise awareness in the region. She currently acts as co-leader of the group. Holly has been a speaker at several conferences, including the NFXF’s international conferences, on topics such as “Working with Your School,” “Media Relations,” “Fundraising,” and “How to Talk to Your Child’s Classmates About Fragile X.” The last of these was made into a podcast for the NFXF.

Donna Beauchamp 

Kansas Fragile X LINKS Group Co-Leader, Case Manager, Mother of two w/ FXS,  Overland Park, KS 

Donna Beauchamp is the mother of three adults. Both of her sons, ages 26 and 31, are fully effected by Fragile X syndrome. Her daughter is a carrier FX.

Using life experience and knowledge gained from having children with FX, Donna has worked as an educational advocate, community educator, family support coordinator, and research program assistant. She is currently a targeted case manager serving people with all developmental disabilities across the life span.

Agenda  

7:30—8:00 Registration and breakfast  

8:00—8:15 Introduction  

8:15—10:15  Behavioral Issues and Remedies, Dr. Braden 

10:15 - 10:30 Break  

10:30—12:30 Learning Style and Educational Strategies for Reading, Math and Writing, Dr. Braden  

12:30 - 1:30 Lunch  

1:30—2:30 Talking to Students about Fragile X Syndrome,  Ms. Usrey-Roos  

1:30 - 2:30 "Hands On for Educators" Break out session for Educators, OT/SPL's, Paras and more!  Dr. Braden

2:30—3:30 "How did they grow up so fast?"  What you need to know and what your child's options are as an adult, Mrs. Beauchamp   

3:30—4:30 Questions and Networking

Who should attend? 

Families, educators, OTs, SLPs, and other providers who care for and work with children and adults with Fragile X Syndrome and Autism Spectrum Disorder.

Can I Attend the ”Hands on for Educators” break out session? 

We are happy to share that Dr. Braden is planning a “Hands on for Educators” breakout session after lunch that is open to all educators that attend the conference.  All you need to do is identify the individual with FXS or ASD’s interests such as TV shows, video games, obsessions (elevators opening or closing, cooking etc) or books or favorite toys.  Then the educators will find images on line that match the area of interest. Those images can be used to make matching activities, reading materials, math sheets and tokens. Her lecture during this session will include actual materials and slides to illustrate how they are used.  They are so high strength that they can be used to teach new concepts in all areas of learning and even as a reinforcer.  One member from each team will go home from the conference with the material that is designed for that individual on a flash drive. 

How much does it cost?

$35 per person which includes continental breakfast, lunch and materials. Certificates of attendance will be provided for each attendee.

When to Register By?

Pre-registration is encouraged by February 10th. While we will welcome walk-in registrations on the day of the event, we encourage advance registration to make sure you have a name badge printed and a certificate of attendance, in addition to our having an accurate head count for the food order.  If you want to register in advance but pay on the day of the event, you may do so by selecting “Other Payment Options” and then to pay by check.  We will be able to accept checks and/or credit card payments at the conference.  Scholarships will be available to families affected by Fragile X.  Please email us at Kansasfx@gmail.com if you are interested.

Looking for a Hotel?

Hilton Garden Inn Olathe at 12080 S. Strang Line Road has a block of rooms set aside for February 21st and 22nd.  To receive the discounted price of $109.00 plus fees per night, you must call 913-815-2345 and mention the Kansas Fragile X LINKS Group by Feb. 15th.  http://hiltongardeninn3.hilton.com/en/hotels/kansas/hilton-garden-inn-olathe-MCIOLGI/index.html