24 Hours of Schweitzer 2017
$150
24 Hours of Schweitzer 2017

24 Hours of Schweitzer 2017

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Schweitzer Mountain Resort

1000 Schweitzer Mountain Road

Sandpoint, ID 83864

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24 Hours of Schweitzer



24 hours of Schweitzer is a unique opportunity to ski and ride Schweitzer Mountain Resort for a full 24 hours. Teams will ski and ride while completing hourly challenges for team points that exist all over the resort. Challenges can be as simple as building a snowman or as hard as crossing a slack line in your ski boots. All challenges promise to be exciting and fun! They will keep you skiing for a full 24 hours. Your team decides how to best tackle the 24 hours to gain maximum points. Teams will ski and ride for prizes, bragging rights and most importantly fundraising for Cystinosis research and Hank’s future. On Saturday evening after the event there is an awards party and auction that includes an exciting menu.

Limited to 200 participants.

Race Categories:

Blue Square Challenge: Teams of 2 and 4

  • Ski/Ride the entire resort
  • One point given per person for completion of each challenge (1 challenge each hour)
  • One point bonus if entire team completes challenge
  • Child friendly challenges
  • Tie breakers based on donations received
  • Awards given to top teams

Black Diamond: Teams of 2 and 4

  • Challenges are harder and may consist of skiing/hiking for certain time periods.
  • Ski/Ride the entire resort
  • One point given per person for completion of each challenge (1 challenge each hour)
  • One point bonus if entire team completes challenge
  • Challenges are timed and/or scored based on performance and awarded bonus points. (ie. Balloon darts or Nastar)
  • Tie breakers based on donations received
  • Teams in the Black Diamond division will also gain extra points for most ski/board laps completed during a certain time period. They must also complete each hourly challenge during this time for max points.
  • Awards given to top teams


** Bring in $750 in donations and receive a 24 hours of Schweitzer jacket.

Prizes:

Team prizes for each category

Top fundraiser – You will want to win this!

How to Register:

  • Online
  • Fax/Mail
  • Each team member must register.
  • Registration fee is $150 per person + $100 in pledges.


Payment:

Entry fees and donations to teams can be made online or by check (payable to 24 Hours for Hank).

What’s included in entry fees:

  • Lift access
  • Event t- shirt
  • Lunch feed
  • Dinner feed
  • Midnight feed
  • Equipment support
  • Team Pit area (sleeping bag accommodations in Lakeview Lodge)
  • Limited hotel discounts at the Selkirk Lodge.
  • One ticket to Awards Dinner & Silent Auction on Saturday night.
  • Additional Dinner & Silent Auction tickets are available

Amenities available:

  • RV camping is on a first come first serve basis (no hook ups)
  • Rider packet pickup 6:00 – 8:00pm Thursday night and 6:00 - 7:30am Friday
  • Equipment support
  • All Schweitzer amenities

What is Cystinosis?

Cystinosis is a rare metabolic disease that affects approximately 500 people in the United States (mostly children), and about 2,000 people worldwide. This disease causes the amino acid “cystine” to accumulate in the cells of the body. Over time, the cystine damages various organs including the kidneys, liver, muscles, white blood cells, eyes, and central nervous system. Other complications include muscle wasting, growth loss, difficulty swallowing, and developmental delays.

Termed an “orphan disease,” Cystinosis is a disorder which has not been “adopted” by the pharmaceutical industry because it provides little financial incentive for the private sector to make and market new medications to treat it or prevent it. There is a medicine that prolongs the lives of Cystinosis sufferers, but there is no cure. Cystagon, the powerful medication used to treat Cystinosis, must be consumed every six hours. But the medicine’s severe side effects and demanding dosing schedule, for which parents must awaken children nightly from their sleep, often results in poor compliance. Eye drops are available to stop the painful accumulation of cystine crystals on the corneas but they must be refrigerated and taken every waken hour.

Children with Cystinosis generally appear normal during the first 9-10 months of life. By one year of age, symptoms occur including excessive thirst and urination, failure to thrive, slow growth, metabolic acidosis and other chemical and renal tubular abnormalities. Children often appear pale and thin and have short stature. The abnormally high loss of phosphorous in the urine leads to rickets. After one year of age, cystine crystals appear in the cornea and cause a severe sensitivity to light (photophobia). Due to the rigorous 6 hour schedule of taking 5 different medications the children always feel the way you or I would right before we “bonk” or hit the wall. Dehydration is always a concern. In time, patients can develop problems such as hypothyroidism, severe muscle weakness and central nervous system complications. These children have normal intelligence, but have an unusual defect in short-term visual memory. Many have poor GI motility. Cystagon TM causes hyper secretion of gastric acid, resulting in gastric distress.

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Schweitzer Mountain Resort

1000 Schweitzer Mountain Road

Sandpoint, ID 83864

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