$0 – $150

2020 SBP Rare Disease Day Symposium & CDG Family Conference

Event Information

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Date and Time

Location

Location

The Dana On Mission Bay, BW Premier Collection

1710 West Mission Bay Drive

San Diego, CA 92109

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Refund Policy

Refund Policy

Refunds up to 30 days before event

Eventbrite's fee is nonrefundable.

Event description

Description

About the Event: Congenital Disorders of Glycosylation

We proudly invite you to the 2020 SBP Rare Disease Day Symposium & CDG Family Conference, February 28- March 1, 2020 in San Diego, CA. The 2018 event is co-organized by Sanford Burnham Prebys (SBP) Medical Discovery Institute and CDG CARE.

This joint scientific and family symposium will be held at The Dana on Mission Bay in San Diego, CA, with the scientific session on February 28-29, and the family session on March 1. To learn more about the symposium and family conference, including confirmed speakers and topics, click here to view the preliminary agenda.

Please note that speakers and topics are subject to change. To facilitate communication between the scientific and family communities, all participants are encouraged to attend the full symposium.


Registration Pricing

The 2020 SBP Rare Disease Day Symposium & CDG Family Conference is made possible by donations, corporate and industry sponsorships, volunteers, and nominal participant registration fees. These fees support material costs, meeting space, catering, and equipment required for the conference.

The registration fee for the 3-day symposium includes access to all Conference sessions, daycare service, lunch, and light refreshments during conference break times.


Registration Fees

General Admission

$150 for the full meeting

Academic/Non-Profit

$45/day or $120 for the full meeting

CDG Parents/Caregivers

$45/day or $115 for the full meeting

CDG Patients/Siblings

Free


Payment

Online payment can be made via credit card (Visa, Mastercard, Discover, American Express) in the Eventbrite online registration system (click the green Tickets button above). Payment will be collected at checkout. No credit card is required for Patient/Sibling registration.


Who do I contact with questions?

SBP/General Inquiries: Debi Jeffery, djeffery@sbpdiscovery.org

CDG CARE: Andrea Miller, conference@cdgcare.com


FAQs

Where should I stay?

The Conference hotel and meeting venue is:

The Dana Hotel on Mission Bay
1710 W Mission Bay Drive
San Diego, CA 92109

(800) 445-3339

thedana.com

The Dana Hotel on Mission Bay is located in one of San Diego’s favorite family vacation areas, minutes away from local attractions. A room block is available at the discounted rate of $135/night for a standard room or $155/night for a lanai room. This rate is good for up to three days before and after the symposium, and includes free parking and Wi-Fi. To reserve your room, please call (800) 445-3339 and identify yourself as part of the CDG Annual Conference, or click here to reserve online here.

The hotel’s reservation deadline is January 28, 2020 and rooms fill up quickly.


What childcare/daycare services are available?

The 2020 SBP Rare Disease Day Symposium & CDG Family Conference will offer a Therapeutic Daycare Program for both children and young adults affected by CDG and their siblings. The Daycare will be open Friday, February 28th – Sunday, March 1st, during Conference sessions. The Daycare will be closed Saturday afternoon during the Doctor-is-in Session.

Highlights of the Program will include: sensory and educational benefits provided through an interactive group music program; physical interaction and exploration of animals through a wildlife experience; a full-day of occupational therapy and fun through the “Movement, Muscles and Messes” program provided by a local University Pediatric OT Program; and a variety of additional games, activities, free exploration and movie presentations.

*Pre-registration for the Daycare must be completed by registering each child using the CDG Patient/Sibling ticket type (Enroll in onsite childcare program; Choose Yes ). Daycare tickets are available on a first come first serve basis, and once the Daycare is full, a waitlist will be created.

Approximately 3 months prior to the Conference, a staff member will contact all families who have pre-registered to confirm attendance, gather additional information, and provide families with the hours, policies and procedures of the Daycare. If you have any additional questions regarding the Daycare, please email Andrea Miller at conference@cdgcare.com.


What is the Poster Session?

In 2020, a poster session will provide a unique opportunity for junior investigators and postdocs to present emerging science on Congenital Disorders of Glycosylation.

The Poster Session will begin at 5:00pm on February 28, 2020 at The Dana on Mission Bay. Admission to the Poster Session is included with your registration. Light refreshments will be provided.


What is the Doctor-Is-In Session?

Now in its 3rd year, the SBP Rare Disease Day Symposium’s Doctor-Is-In-Session brings together medical
researchers, clinicians, advocates, patients and their families for an afternoon of hands-on collaboration in a small-group, round-robin format. Families and professionals choosing to participate in this innovative information-sharing session will be contacted by event staff with more information. To pre-register, please be sure to select the "Doctor-Is-In Session" on your order form.


What meals are included with my registration fee?

Your registration fee includes a continental breakfast, lunch, and light refreshments during session breaks, as well as admission to the Poster Session on Friday, February 28 and Evening Reception on Saturday, February 29 (per-day tickets include events on the date of purchase).

Dinners are not included. However, the hotel does have a dining establishment onsite. There is a General Store within walking distance where you can purchase food items and toiletries but please note that there are limited dining options in the immediate area. More information can be requested from the hotel at check-in.


What are my transportation/parking options for getting to and from the event?

The Dana on Mission Bay is located 7 miles from the San Diego International Airport. Please note that public transportation in San Diego is limited and the hotel does not have a dedicated airport shuttle.

A one-way traditional taxi fare is approximately $40 with tip. Ride-sharing services such as Lyft ($13-$30 one-way)* or Uber ($13-52 one-way)* are widely used in the San Diego area. Renting a car is often the most economical option for a family visiting San Diego. The hotel does offer a free shuttle to nearby Sea World and Belmont Park, and parking at The Dana on Mission Bay is free.

*fare depends on class of service (basic to premium)


What's the refund policy?

The cancellation deadline is January 28, 2020. To request a cancellation, send a written notification by email to djeffery@sbpdiscovery.org, and a member of the event team will follow up with you directly.

No refunds will be issued for requests received after the cancellation deadline.


2020 SBP Rare Disease Day
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Date and Time

Location

The Dana On Mission Bay, BW Premier Collection

1710 West Mission Bay Drive

San Diego, CA 92109

View Map

Refund Policy

Refunds up to 30 days before event

Eventbrite's fee is nonrefundable.

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