2019 Rett Syndrome Education Day
Event Information
About this Event
This is a free event, hosted at no charge to attendees. Family involvement is critical to finding a cure! Without active participation from children and adults diagnosed with Rett syndrome, research advancements go nowhere.
Families and caregivers of inidiviudals who have Rett Syndrome are welcome to attend our Rett Syndrome Education Day.
Tentative Agenda (as of 1-17-19)
8:00 - 8:45 am Registration and Continental Breakfast
8:45 -9:00 am Welcome
9:00 – 10:00 am Rettsyndrome.org
10:00 – 10:30 am U of M Research Group
10:30 – 10:45 am Break
10:45 am – 12:00 pm “Helping Your Daughter Live Her Best Life”
Physician Panel Presentation
12:00 – 1:00 pm Lunch
1:00 – 3:00 pm Charting the Journey
3:00 – 3:15 pm Break
3:15 – 4:15 pm Value and Role of Rehabilitation Therapies
Throughout Life Span – OT, PT and Speech
4:30 - 6:00 pm Social Hour at River Park Plaza 6th Floor
Work Cafe
Host Hotel:
Hampton Inn & Suites St. Paul Downtown
651-224-7400
Special event room rate for conference attendees:
$129 – plus tax and $31 per vehicle per day parking fee
Group Name: Gillette & Midwest Rett Syndrome Foundation
Reservations must be made by April 6, 2019
Booking Link: Online booking