This is a free event, hosted at no charge to attendees. Family involvement is critical to finding a cure! Without active participation from children and adults diagnosed with Rett syndrome, research advancements go nowhere.

Families and caregivers of inidiviudals who have Rett Syndrome are welcome to attend our Rett Syndrome Education Day.

Tentative Agenda (as of 1-17-19)

8:00 - 8:45 am Registration and Continental Breakfast

8:45 -9:00 am Welcome

9:00 – 10:00 am Rettsyndrome.org

10:00 – 10:30 am U of M Research Group

10:30 – 10:45 am Break

10:45 am – 12:00 pm “Helping Your Daughter Live Her Best Life”

Physician Panel Presentation

12:00 – 1:00 pm Lunch

1:00 – 3:00 pm Charting the Journey

3:00 – 3:15 pm Break

3:15 – 4:15 pm Value and Role of Rehabilitation Therapies

Throughout Life Span – OT, PT and Speech

4:30 - 6:00 pm Social Hour at River Park Plaza 6th Floor

Work Cafe

Host Hotel:

Hampton Inn & Suites St. Paul Downtown

651-224-7400

Special event room rate for conference attendees:

$129 – plus tax and $31 per vehicle per day parking fee

Group Name: Gillette & Midwest Rett Syndrome Foundation

Reservations must be made by April 6, 2019

Booking Link: Online booking