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2019 Phoenix World Burn Congress

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Location

Hilton Anaheim

777 W Convention Way

Anaheim, CA 92802

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Event description
Phoenix WBC is the world's largest gathering of the burn community - connecting attendees with support, resources, and each other!

About this Event

In 2019, the world's largest gathering of the burn community will return to Anaheim, CA. Join Phoenix Society for Burn Survivors in sunny California for the 31st Annual Phoenix World Burn Congress! Anyone who has been touched by a burn injury is welcome to join us in person or virtually. Programming will include exciting keynote speakers, breakout sessions, and support groups. Join us on Wednesday evening for the annual Walk of Remembrance and Kick-Off Event. We will wrap up the week on Saturday night with a closing banquet with dinner and dancing!

If you can't join us in person - consider joining us through our Virtual Experience. Through the Phoenix World Burn Congress Live Virtual Experience - find support, education, and community without leaving your home. Watch sessions live, ask questions during virtual Q&A's, and live chat with other members of the burn community through our conference app.

Registration

Registration for Phoenix World Burn Congress will occur in three phases:

  • Early bird registration: Now through 9/3
  • Regular registration: 9/4 through 9/25
  • On-site registration: Will occur upon your arrival at the Anaheim Convention Center and will be at the Regular Registration rate

We are able to offer you the following registration rates due to the generosity of our partners and sponsors:

  • Registration on or before 9/3 - $305.00
  • Registration after 9/4 - $415.00
  • W/ CEU’s on or before 9/3 - $415.00
  • W/ CEU’s after 9/4 - $520.00
  • Virtual Experience - FREE
  • Virtual Experience (with CEU’s) - $40.00

The registration fee includes: Kick Off meal and Closing Gala meal– additional food may be provided, details will be provided as they become available.

*If registering for the Phoenix UBelong program - please select the ticket type that corresponds to the childs age group

Keynote Speakers 2019

Thursday, October 3

Stay Strong, Finish Strong – The Flames That Made Me Stronger

Israel “DT” Del Toro, Jr. explores the power of bravery in the face of adversity, staying motivated, and developing the perseverance that will get you to your destination. Only a few short years after his life –threating accident, DT achieved his goal of becoming the first 100-percent combat disabled Air Force technician to re-enlist, proving once again what one can achieve with steadfast tenacity and determination. In his speech, DT seeks to eliminate the stigma associated with disabilities, and prove that with perseverance, no obstacles are insurmountable.

In 2005 while serving in the U.S. Air Force in Afghanistan, Senior Master Sgt. Israel “DT” Del Toro was following routine orders when his Humvee rolled over a buried pressure-plate mine and exploded. The blast severed most of his fingers and left him in a coma for nearly three months, with burns covering the majority of his body. He was given a 15% chance of survival, but Del Toro defied the odds and made a miraculous recovery. During his rehabilitation, Del Toro was introduced to adaptive sports as a therapeutic outlet and it quickly became something he excelled at. He eventually set world records in shot put, discus, and javelin and won a gold medal at The 2016 Invictus Games. For his perseverance and commitment to his country, Senior Master Sgt. Israel Del Toro received The Pat Tillman Award for Service at The 25th ESPYS Presented by Capital One in 2017.

Friday, October 4

Happiness through Gratitude, Compassion, and Forgiveness

Learn how happiness can be enhanced by practicing the qualities of gratitude, compassion and forgiveness. Understand the role each plays in emotional well-being and how, when applied synergistically, their impact is enhanced and many of life’s difficulties can be managed more effectively.

Fred Luskin, Ph.D. is a senior consultant in health promotion at Stanford University, a professor at the Institute for Transpersonal Psychology, and an affiliate faculty member of the Greater Good Science Center. Dr. Luskin serves as Director of the Stanford Forgiveness Projects, an ongoing series of workshops and research projects that investigate the effectiveness of his forgiveness methods on a variety of populations. The forgiveness project has successfully explored forgiveness therapy with people who suffered from the violence in Northern Ireland, Sierra Leone, and the 9/11 attacks on the World Trade Center. His work has been successfully applied and researched in corporate, medical, legal and religious settings. He is the author of Forgive for Good: A Proven Prescription for Health and Happiness and Stress Free for Good: Ten Proven Life Skills for Health and Happiness, with Kenneth Pelletier, Ph.D.

Saturday, October 5

Live Life to the Fullest

Despite their burn injuries, Cindy Rutter and Derrick Green both live their lives to the fullest. You can’t change what happened to you, but you do have the opportunity to change your future! Cindy and Derrick will share their approach to living beyond surviving a burn injury. Learn how to forge ahead despite challenges, roller coasters, and speed bumps in your path. With perseverance, good relationships, mentoring, and giving back, you can accomplish whatever you set your mind to after a burn injury.

Cindy Rutter, BSN, MFTI, has been an advocate for Phoenix Society for Burn Survivors and involved in the burn community for more than 35 years. She recently completed her master’s degree to become a marriage and family therapist. Cindy met Derrick Green in 1999, when she was his burn nurse at UCSD Burn Center, after he sustained a 90% burn injury. They formed an incredible relationship that lasts to this day. This year, Cindy celebrates 60 years of life after burns and Derek celebrates 20.

PRE-CONFERENCE WORKSHOPS

(Requires pre-registration and a fee of $40 applies to each workshop)

Body Image, Sexuality, + Intimacy After a Burn Injury

Cindy Rutter, BSN, MFTI; Ruth B. Rimmer, PhD, CLCP; Radha Holavanahalli, PhD

Full Day Workshop: 9:00am – 12:00pm; lunch on your own; 2:00pm – 5:00pm

In the immediate aftermath of a burn injury, the focus is survival. But what happens next? Body image, sexuality, and intimacy aren’t talked about until much later – if they’re talked about at all. Sexuality is important to your quality of life, encompassing how you feel about yourself and how you relate to others.

Most likely, you look different and your body has permanently changed. As you recover, you may have a lot of questions:

  • Will my life ever be normal?
  • Will my relationships with others be different?
  • Will my significant other still want to be with me?
  • Will anyone be attracted to me?
  • Will anyone ever want to touch me?

After a burn, it’s essential to reconnect to people, take risks, and reach out—but this can be a challenge. This full day workshop will help you understand and face many of the issues related to body image, sexuality, and intimacy after a burn injury.

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Young Adult Workshop: Taking Chances, Enjoying the Ride

Jessica Irven, MS, CCLS, LRT/CTRS; Douglass Clapp, RN, BSN; Alexi Pyles

Full Day Workshop: 8:30am – 5:00pm

Learn new skills through discussions, support groups, breakout sessions and the opportunity to take a chance. For burn survivors and their loved ones, 18-25 years old.

Please commit to ALL of the following workshop times:

  • Wednesday 8:30am – 5:00pm
  • Thursday 3:00pm – 5:00pm
  • Friday 4:30pm – 6:00pm
  • Saturday 10:15am – 11:30am

Taking a chance can be scary, like that first drop in a roller coaster or coming to a workshop for the first time. At Knott’s Berry Farm, we’ll look at roller coasters as an opportunity to take a chance in fun, supported, and healthy ways.

The first drop can kind of be a shock, but as the roller coaster of life continues, we can become more confident in whatever we face: opening up to a group for the first time, starting a new job, building or ending relationships, or graduating from college.

Whether you’re a roller coaster veteran or this will be your first time, we’ll help you find the right ride to launch your Phoenix World Burn Congress experience and develop new ways to challenge yourself when you return home. Let’s enjoy the ride together!

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Facing the Future: Tools + Steps to Social Confidence + Control

Barbara Kammerer Quayle, MA; Mona Kreuger, MA, MSW; Tony Gonzalez

2:00pm – 5:00pm

This power-packed workshop provides the tools for survivors and families to get back to living after a burn injury. It enables you to feel comfortable and confident in any social, work, or school setting. You will learn simple, specific, and smart ways to manage stares, startled glances, abrupt questions, and whispers from three burn survivors who use these tools in their daily lives. This workshop is designed for survivors, family, friends, and burn care professionals. Everyone leaves with crucial, easy-to-use tools to build social control, social comfort, and social competence!

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[Family Workshop] Caregiver Self Care: Simple Strategies to use Every Day

Kristen Quinn, CMHC, CCLS; Linda Garcia, MA, CCLS; Jillian Clark, PT

2:00pm – 5:00pm

In this hands-on workshop, you’ll learn strategies to identify and address compassion fatigue in others and in yourself. You’ll identify what you already do to take care of yourself and other simple everyday self-care strategies. Learn several techniques to use in your personal or professional life. Finally, learn how to tell when self-care isn’t working and how you can ask for help.

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Exploring Land and Sea: Resources for Water Activity + Outdoor Recreation

Dr. Jamie Hoffman, CTRS; Casey Connell, PADI Course Director

2:00pm – 5:00pm

Whether you’re an avid adventurer, an inexperienced swimmer, or just someone who wants to explore the outdoors, you’ll find the information and resources you need to play. You’ll learn the benefits of water activity and outdoor recreation, and gain an introduction to terminology and equipment for scuba diving, adaptive kayaking, adaptive cycling, and other outdoor adventures. You will take away knowledge and resources to continue your adventures on land or at sea.

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Presenting and Preserving Our Journey Toward the New Normal

Scott A. Krohn; Benita Alioth

2:00pm – 5:00pm

In this supportive atmosphere, you’ll voice your passions, your hopes, your obstacles, your dreams, and your stories. After responding to prompts including photos, phrases, tastes, and scents, you’ll have the opportunity to share your writing in small groups and receive encouraging feedback from facilitators and other group members. Based on the Write Around Portland model, this program de-emphasizes spelling, grammar, punctuation, and other things associated with high school English class. Sharpen your pencil and get ready to dive into supportive community of writers and survivors.

ANNUAL EVENTS

Walk of Remembrance

Wednesday, October 2 | 5:30pm

The burn community comes together at the annual Walk of Remembrance to honor those who have passed from burn injuries, remember our own losses, and raise our voices for burn care and prevention. As we return to the hotel, we’ll shift our focus to celebration as we prepare to reconnect with life and focus on healing throughout the conference.

We’ll leave the hotel staging area at 5:30pm, then walk together from the Hilton Anaheim to the Grand Plaza at the Anaheim Convention Center. After a brief program, we’ll return to the Hilton Anaheim for the Kick-Off Reception at 6:30pm. Casual dress and shoes are recommended.

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Kick-Off Reception

Wednesday, October 2 | 6:30pm–9:00pm

Reunite with old friends and make some new ones at this casual light-fare opening reception. The fun will be held at the Anaheim Hilton.

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Talent Show

Friday, October 4 | 7:30pm – 9:30pm

Showcase your talent in this fun-filled, family-friendly event. There are no prizes or awards – just good clean fun! There are only 20 performance slots, so sign up early online or during registration. Please note that performance times are limited to a maximum of 3 minutes to allow time for all performances.

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Closing Banquet

Saturday, October 5 | 6:00pm–11:00pm

We’ll wrap up our time together with this fun-filled evening. Join us for dinner and the annual slideshow. The dance floor will be hopping with something for everyone so practice your favorite step and join the fun! A cash bar will be provided.

PHOENIX UBELONG YOUTH AND TEEN

Calling all 7-17 year old burn survivors, siblings, and children of survivors! Join the Phoenix UBelong family by participating in our 9th annual youth and teen program. This purposefully structured, three-day program runs alongside the general conference and offers a supportive atmosphere for self-expression, skill-building, peer support, and pure fun.

Unstoppable!

Our focus this year is learning to be unstoppable, connecting with peers, team-building, friendship, and inner strength.

Youth Track (ages 7-12)

  • Offsite outing to Splitsville Lanes, where participants will enjoy bowling with their peers.
  • A special session with the Bully Dudes to help participants learn and practice the skills it takes to recognize and stand up to bullies.
  • Activities to work on group cohesion, team building, problem solving, and leadership as they make their way through the Phoenix UBelong Challenge Course.

Teen Track (age 13-17)

  • Offsite outing to Knott’s Berry Farms
  • A peer mentor visit from young adults. This is a favorite amongst our teens!
  • 16 and 17-year-old participants will attend open mic with their young adult peer mentors.

All ages will enjoy small group time with their peers for fun activities and skill-building to help in their healing. Participants can participate in yoga to master coping and relaxation skills, or spend time with therapy dogs to help relax.

Requirements for Phoenix UBelong:

  • Children must be between the ages of 7-17 at the beginning of the Fall 2019 school year, and must have either personally experienced a burn injury, or have been affected by a burn injury of a member of their immediate family.
  • Parents or guardians are required to be registered for Phoenix World Burn Congress and to sign their child in and out of the Phoenix UBelong program each day using a photo ID. The program runs from morning until afternoon; parents will be given designated pick up and drop off times specific to each day of the program.
  • To allow for the best experience, we ask that you commit your child’s participation each day and for the full program length. Age-appropriate lunch and snacks are provided to participants daily.

To get the most out of these experiences, participants must:

  • Be able to withstand 5-7 hours of programming that involve some periods of physical activity
  • Be able to adjust to new people, new places, and new things
  • Have the ability to separate from parents for several hours
  • Be able to follow directions from program staff
  • Be able to cooperate with other participants in their age group

Sign Up

Register each child individually on the Phoenix WBC registration form. Be sure to indicate that your child will be attending the Phoenix UBelong program – regular registration fees apply. A Phoenix Society representative will personally contact you to confirm your child’s registration and help your family prepare for the event.

Space is limited, please register in advance.

Family Programming

Facilitated by: Kristen Quinn CHMC, CCLS and Linda Garcia, MA, CCLS

Connect with other families and learn from experts in the field of burn and family-centered care to gain new tools, insight, and perspective. A burn injury has a profound impact on families psychologically, socially and physically. These family-focused workshops are open to all conference attendees and have been designed to meet the specific needs of parents and families navigating the journey of burn recovery.

Wednesday, October 2

  • 2:00 pm–5:00 pm Caregiver Self Care: Simple Strategies to use Every Day ($40 - Pre-Registration Required; Space is Limited. Refer to description in Pre-Conference Workshop section above)

Thursday, October 3

  • 3:00 pm–5:00 pm Family Panel: Helping Those We Love Survive + Thrive

Panelists: Brennan Christensen, Cinthya Gonzalez, Efren Gutierrez, Christie Panto

Learn about parenting strategies to encourage a positive sense of self, addressing the needs of siblings as well as the burn-injured child, parenting after abuse, and coping with grief while parenting your surviving children.

Friday, October 4

  • 4:30 pm–6:00 pm Family-Focused Facilitated Support Group

Our family-focused support group is designed to meet the specific needs of caregivers supporting children at all ages (youth, teen, and adult).

Saturday, October 5

  • 10:15 am–11:30 am Families Healing Together – Family-Centered Open Mic

An open mic session for all family members that have been impacted by a burn injury.

2019 PHOENIX WBC - GENERAL SCHEDULE

Wednesday, October 2

10:00 am–5:30 pm Registration

10:00 am – 5:30 pm *Massage in Registration Area

8:45 am–5:00 pm Young Adult Workshop: Taking Chances, Enjoying the Ride

9:00 am – 5:00 pm Body Image, Sexuality, and Intimacy After a Burn Injury

2:00 pm–5:00 pm Pre-Congress Workshops

  • Facing the Future: Tools and STEPS to Social Confidence and Control
  • Caregiver Self Care: Simple Strategies to use Every Day [Family Workshop]
  • Exploring Land + Sea: Resources for Water Activity + Outdoor Recreation
  • Presenting + Preserving Our Journey Toward the New Normal

5:30 pm–6:30 pm *Walk of Remembrance

6:30 pm–9:00 pm *Kick-Off Reception

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Thursday, October 3

7:00 am–7:45 am *Yoga

8:00 am–5:30 pm Registration

8:00 am – 5:30 pm Exhibitors

9:00 am–10:10 am Opening Ceremony

10:30 am–5:15 pm Phoenix UBelong

10:30 am - 11:30 am Stay Strong Finish Strong – The Flames That Made Me Stronger - Israel “DT” Del Toro, Jr.

11:30 am–12:50 pm Lunch (on own)

1:00 pm–6:30 pm Wellness Center Programming

1:00 pm–2:15 pm Healing Through Our Stories—Open Mic

3:00 pm – 5:00 pm Creative Cosmetics: Image Enhancement Tips + Tools for Burn Survivors.

3:00 pm–5:00 pm Family Panel: Helping those we love survive + thrive

3:00 pm–5:00 pm Breakout Sessions

  • Telling Your Story With Purpose: Learn to change hearts + minds by sharing your experience
  • Adults Burned as Children
  • Thinking Outside of the Box: Finding Recreation, Leisure + Sport in Your Life
  • In the Line of Duty Panel Discussion: Challenges Faced by those Who Serve – (open to all attendees)
  • Sexuality and Intimacy for Survivors and Family Members — (survivors and family members only please)
  • An Intimate Conversation: Sexual Health Following a Burn Injury —(Provider/Professional)
  • Complicated PTSD: Information for the Survivor + Family Members — (survivors and family members only please)
  • Complicated PTSD: Information for the Professionals + Providers of Care

5:30 pm–6:30 pm Support Groups

6:45 pm–7:45 pm Friends of Bill W

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Friday, October 4

7:00 am–7:45 am *Yoga

8:00 am–5:00 pm Registration

8:00 am – 2:00 pm Exhibitors Open

8:00 am – 9:00 am Aftercare Reintegration Committee

8:45 am – 4:00 pm Phoenix UBelong

9:00 am–10:15 am Happiness through Gratitude, Compassion + Forgiveness - Frederic Luskin, PhD

10:45 am–12:15 pm Healing Through our Stories—Open Mic

10:45 am– 12:30pm Wellness Center Programming

10:45 am – 12:30 pm Creative Cosmetics: Image Enhancement Tips & Tools for Burn Survivors

12:30 pm–2:00 pm Lunch (on own)

2:00 pm – 2:15 pm Exhibitor Drawing (must be present to win)

2:00 pm – 4:00 pm Creative Cosmetics: Image Enhancement for Burn Survivors

2:00 pm – 6:00 pm Wellness Center Programming

2:00 pm – 4:00 pm Breakout Sessions

  • Why Advocacy?: Making a Difference in the Burn Community + Beyond
  • Social Reintegration: Helping Survivors and their Families Re-Engage in their Communities
  • Substance Abuse, Opioid Addiction + Trauma
  • Canine Companions
  • Complicated PTSD — (survivors and family members only please; repeat session from 10/3)
  • After the Fire: Finding and Maximizing Your Resilience
  • Understanding the Role of Lasers: Science vs Myths

4:30 pm – 6:00 pm Support Groups

6:30 pm – 7:15 pm Friends of Bill W

7:30 pm–9:30 pm *Talent Show

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Saturday, October 5

7:00 am–7:45 am *Yoga

8:00 am–12:00 pm Registration

8:45 am–11:30 am Phoenix UBelong

9:00 am – 10:00 am Live Life to the Fullest - Cindy Rutter BSN, MFTI, Derrick Green

10:00 am–11:00 am Young Adult Workshop Closing Session

10:15 am–11:45 am Healing Through Our Stories—Open Mic

10:15 am–11:30 am Families Healing Together – Family Centered Open Mic

10:15 am – 11:45 am Wellness Center Programming

12:00 pm–1:00 pm Closing Ceremony

1:00 pm–2:30 pm Lunch (on own)

2:30 pm – 4:30 pm Support Groups: Creating + Maintaining

2:30 pm–3:30 pm Friends of Bill W

2:30 pm – 6:00 pm Free Time - Take the opportunity to explore Anaheim, connect with new and old friends, or rest and restore!

6:00 pm–11:00 pm: *Closing Celebration —Dinner and Entertainment

* Indicates Social Events

WELLNESS CENTER

Daily Programming Thursday – Saturday

The Wellness Center offers restoration, tools, resources, and inspiration to support you on your healing journey. Experts across many fields will help you learn new skills and experience complementary healing methods.

Start the day with vinyasa (gentle) flow yoga or give Zumba a try in the afternoon! Unwind in our dedicated massage area, coordinated by Handle With Care Massage Therapy, with a 15 minute massage from independent licensed massage therapists, and pop in throughout the week for a quiet place to meditate, relax, and reflect.

All levels are welcome; each program can be modified to your ability and comfort level. Additional program listings will be available soon.

GENERAL INFORMATION

PAYMENT

***Full payment must be received in order to receive name badge at registration for Phoenix WBC as well as be eligible for Nursing Contact Hours in both the in-person and virtual setting.

HOTEL ACCOMMODATIONS

Remember that registration does not include your hotel accommodations at the Hilton Anaheim. At the Hilton Anaheim, we have negotiated a rate of $196 per night plus tax/fees. This rate includes complimentary wireless internet in your room as well as discounted Health Club Rate.

Most nights of our PWBC Room Block at the Hilton Anaheim have sold out. From now until September 1st, continue to check with the hotel as there are often cancellations and you can be added into the room block. To contact the hotel, please call Toll Free: 877-776-4932 to see if there are cancellations in the Phoenix World Burn Congress block, be sure to mention the code WBC or that you are a Phoenix WBC attendee. After Sept 1st, we will be maintaining a wait list and working with the hotel to fill the rooms. Stay tuned to our website and social media for further instructions.

Reservations must be made on or before September 11, 2019 at 11:59 PM EDT to be eligible for the group rate. If you are having any difficulty with booking a room, please contact mtinney@phoenix-society.org. In the event the Hilton Anaheim is sold out, you may need to check surrounding hotels.

ADA ACCOMMODATIONS

If you require ADA accommodations, please contact Megan Tinney at (800) 888-2876 or via email at mtinney@phoenix-society.org by August 23, 2019. If you do not notify of your needs by this time, we can not guarantee ADA accommodations.

TRAVEL ARRANGEMENTS

Complimentary Shuttle Service

Anaheim Fire & Rescue and many others have volunteered their time to assist you. Uniformed firefighters and Phoenix Society volunteers will be easily recognizable at the airport and the hotel to guide you toward the complimentary shuttle service.

We are only able to provide complimentary transportation to/from John Wayne, Orange County airport. Please seek alternative transportation if you are arriving at another location.

From John Wayne Airport, Orange County (Airport Code: SNA) to the Hilton Anaheim:

  • Wednesday, October 2 | 9:00am – 9:00pm

From the Hilton Anaheim to John Wayne Airport, Orange County (SNA):

  • Sunday, October 6 | 4:30 am – 3:00 pm

Please note that transportation will NOT be provided on Tuesday, October 1st.

Infants & Toddlers

If you are traveling with babies or children who require a car seat or booster seat, we ask that you are aware of California law regulating the use of car/booster seats in various types of vehicles. Please refer to this link for more information: California Child Safety Seats. We encourage you to make an educated choice regarding safety and remind you that you can choose transportation options which ensure safety belts for all ages and family members.

Phoenix Society can provide more information about the types of vehicles used for our complementary airport shuttles on Wednesday and Sunday. Please contact mtinney@phoenix-society.org for more information.

CONTACT HOURS

For information about nursing contact hours, please contact Pam Peterson at (800) 888-2876 or via email at pam@phoenix-society.org .

EQUIPMENT NEEDS

If you are in need of equipment (including motorized scooters or wheelchairs) when in town, please contact OC Medical Supply, Inc. Check out this link for more information: OC Medical Supply . When you call, please mention that you are with the Phoenix World Burn Congress to have the delivery fee waived. If you have questions, please contact mtinney@phoenix-society.org for more information.

REGISTRATION REFUNDS

If you are in need to refund your registration, you must send an email to request the refund to mtinney@phoenix-society.org . Registration fee includes a nonrefundable processing charge of $50; an invoice will be sent to your attention for this amount. No refunds for cancellations after September 13, 2019 at 11:59 EST.

EVENT CANCELLATIONS

If your event is cancelled, The Phoenix Society, Inc. will fully refund your registration fee with no penalties or other reductions. Any fees incurred by cancellations of related commitments, including but not limited to travel and hotel reservations, cannot be paid by Phoenix Society, Inc. and are your responsibility.

SPEAKERS & SCHEDULE

Although we make every effort to honor our speaker list and the event schedule, circumstances are sometimes beyond our control and therefore the event speakers and schedules are subject to change without notice.

PRIVACY POLICY

Except as required by law, the contact and personal information we collect about you will not be shared outside of The Phoenix Society, Inc.

We may photograph or videotape speakers and attendees or request written testimonials for use in online or printed promotions. By virtue of your attendance, you grant us the right to take such photos or videos and to use your likeness and share testimonials in such materials.

GENERAL QUESTIONS

Please contact the Phoenix Society at (800) 888-2876 if you have questions or concerns regarding your Phoenix World Burn Congress Registration. We'll see you in Anaheim!

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Hilton Anaheim

777 W Convention Way

Anaheim, CA 92802

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