$0 – $30

2017 Schizencephaly bundle We Are R.A.R.E

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Holiday Inn Hotel & Suites Across From Universal Orlando

5905 South Kirkman Road

Orlando, FL 32819

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Event description


We Are RARE invites you to "My Beautiful Brain 2017 Schizencephaly convention " At least one family member must purchase a bundle.

A weekend full of keynote speakers with the emphasis on neurology,

When Booking Online please follow the directions below:
• STEP 1 Login to our website: www.hiuniversal.com

• STEP 2 Put in the Group Dates: 10/19-22/2017
• STEP 3 Click on the: Group Code Blue Link
• STEP 4 Enter Group Code: _WAR__
• For Calling in Reservations 24/7 days a week: 1-800-216-0635 - same dates and same group code

Thursday Meet and greet all day. swimming if weather is nice or cocktail area/coffee

Friday Oct 20, 2017

Regina Nelson PhD

cannabis education and case study Schizencephaly 8:00 am-9:30 am

*We expect this to be one of the most filled room speakers

Breakout session 10 a.m- 11 a.m

Pruvit keytone supplement 10:00 am-11:00 am

*Breakout session TBA

Vasayo 12pm-1pm Our mission is to transform lives physically, financially, and socially through Superior Delivery of products, opportunity, and community. www.vasayo.com

Robert Scott Bell 1 pm-2:00pm

You will be amazed by the amount of information about healing that is kept secret from you and what you can do to learn more about it! Robert Scott Bell is a homeopathic practitioner with a passion for health and healing unmatched by anybody on radio. Robert has personally overcome numerous chronic diseases using natural healing principles and has dedicated his life to revealing the healing power within all of us, and as a well-known and respected member of the health community, has access to fantastic guests from every specialty and practice to better equip our listeners to heal themselves from the inside out! He will be available at his booth for further speaking

Scheril Murray Powell, Esq. Counsel at Michael Minardi, P.A. Cannabis and Civil Law. 2:00 p.m- 3:00 p.m
Attorney. She is also General Counsel for Minorities for Medical Marijuana and General Counsel for Patience
with Patients. She is a graduate of Florida International University College of Law. She is a member of the
Florida Bar, Dade County Bar Association, Broward County Bar Association, Palm Beach County Bar
Association, and National Bar Association, and was selected by her peers to speak at the FIU Law
Commencement Ceremony.
She has been selected to present at a number of Cannabis Conferences including the Canna-Ed Conference,
Cannaday, and Cannabiz Conferences hosted by the Florida Cannabis Coalition. Scheril is the regular
Cannabis Law expert on Cannabis Life Radio every Sunday morning on 850 The Talk Radio in Florida, and
Vice President of HIGHLIFE Media. She is the Vice-President of the Broward- Palm Beach Cannabis Lab.
She presented at the National Association of Black Journalists and National Association of Hispanic
Journalists Joint Conference in August 2016 on the topic of: “Exposing the Truth: Getting Access to Audio
and Video Evidence in Police Involved Shootings”. Scheril is the Secretary of the FIU College of Law Alumni
Board. While at FIU Law, she was the Charter President of the Palm Beach ABA Student Organization and a
member and coach of the Board of Advocates Negotiation Team. In 2013, Scheril won the FIU Law
Intramurals Negotiation Competition, also she and her partner won the ABA Southern Region Negotiation
Competition. In 2014, she and her partner came in 2nd place in the Nelson Mandela International Negotiation
Competition and she was awarded the distinction of Best Overall Negotiator for her efforts.
Scheril served on the Black Law Student Association’s National Board for two years and is passionate about
eradicating sex trafficking and other social justice issues such as police brutality. She has interned at the State
Attorney’s office in the 15th Judicial Circuit of Palm Beach County and for two judges of the 17th Judicial
Circuit of Broward County. In the summer of 2014, she was served as an Anti-Defamation League Summer associate.

She believes that practicing the law and advocacy for the disadvantaged go hand in hand. She is an activist and
has dedicated her time and resources to promoting awareness, access to educational resources, and support for
survivors of domestic violence and trafficking. She has a Facebook page called “Police Chronicles” which
documents national police interactions with the community.
She mentors Pre-Law and Law School students of diverse backgrounds and has been a speaker at the Black
and Hispanic Prelaw Conference, the Diversity Prelaw Conference, and the HBCU Prelaw Summit and Expo.
Law is a second career for Scheril. She spent over a decade in the wireless industry working for T-Mobile,
USA; T-Mobile, UK; RIM BlackBerry; and MetroPCS as a Customer Retention Strategist and Marketing
Interface Manager rolling out training, technical change, cultural change, and process improvement projects
Scheril received her undergraduate Business Management degree from Florida Atlantic University with a
minor in Marketing where she pledged Delta Sigma Theta Sorority, Inc. and served as the Student Government
Senate Speaker for seven campuses.
Scheril credits her hard working and strict Jamaican parents James and Judith Hall for her work ethic, tenacity,
persistence, and commitment to excellence. She was taught at a young age that we all have a responsibility to
each other and must be the example that tears down stereotypes while opening the door for others to follow in
your footsteps. She stays motivated by remembering that her son Judah is watching how she lives her values
and “walks the talk” in her daily activities. Scheril believes that every test is for a testimony that will glorify
God. If He can do all that he has done for me…imagine his plans for you.

She will be joined by

Arby Barroso

Green Roads World CBD Cannabis Life Radio

Daniel Cabello MD neurology 3:00 pm-4:00 pm

*Dr. Cabello joined Clinical Neurosciences of Tampa Bay in 2007. He is a Harvard trained epileptologist with vast experience in the latest epilepsy treatments such as epilepsy surgery, Vagal Nerve Stimulation (VNS) therapy, responsive neurostimulation (RNS) or also called neuropace, use of medical marijuana (low THC cannabis, also known as charlotte’s web), ketogenic diet, laser oblation surgery and the use of new antiepileptic drugs. During his two-year Epilepsy fellowship at Massachusetts General Hospital, Dr. Cabello gained expertise in the management of complicated epilepsy patients, interpretation of EEG, Polysomnography and evoked potentials, and participated in clinical and basic research involving antiepileptic drugs and advanced imaging techniques. During his fellowship, he also trained and is board certified in Sleep Medicine. He has medical privileges at Morton Plant Hospital, Tampa General Hospital, Mease Countryside Hospital and actively participates in the weekly epilepsy conference at Tampa General Hospital to discuss epilepsy surgery cases with other regional epileptologists.

(We expect a larger turnout for this speaker)

4 p.m – 5 p.m

Schizencephaly swim night! 7:00 pm

Everyone get down to the pool. Parents grab a soda or a nice cocktail and let’s have a Schizencephaly swim night with our heated pool. A great opportunity to get to meet other families


Breakfast 7am at hotel

Speakers TBA

Estate Legacy Law center LLC Special needs trusts and Guardianship. 9am -10:00

Explanations of special needs trusts, Guardian Ad litem and the process of gaining your childs special needs trust.

Speaker TBA 10 a.m-11:00 a.m

*break* 11:00 – 12:00 P.M

Adult Panel 12:00 pm-1:30 pm

Heather Leigh, Paul, Justin, Sarah will be answering questions and explaining what they know about Schizencephaly based off their life with it.

*We expect a large turnout for this event*

Break 1:30 pm-3:00 pm

Island Dolphin Care Stephenie Bishop

3:00 pm-3:30pm

Alternative therapy Alison Moral

3:30-4:00 pm

Speakers for 4 p.m -5:00 p.m TBA

Banquet dinner provided by RARE 7 p.m meet our board

All theme park passes will be distributed at this banquet

Schizencephaly swim 7:30 pm


Breakfast at hotel

Schizencephaly awareness at Orlando theme parks.

We are rare is teamed up with Give Kids the World compassion care program to allow all families to select a theme park. Disney, Universal or Sea World

This year we’ve put much consideration into location and particular information that will allow us to understand this rare neurological disorder called Schizencephaly and allow our Schizability to shine

*There are no events planned for Thursday except meet and greets by the pool and commons

*There will be a special booth for special consideration for genetic forms of Schizencephaly and gene mutations.

*RARE pamphlets and print outs

*Professionally Filmed. Waivers on site for video release

Many of us will be arriving Thursday to welcome our families discount price for hotel is from Oct 19-Oct 22

It includes

Bundle price 25$




* Service of alcohol subject to state and local laws. Must be of legal drinking age.

*Waivers on site for professional filming

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Holiday Inn Hotel & Suites Across From Universal Orlando

5905 South Kirkman Road

Orlando, FL 32819

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