$30 – $580

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The Westin Indianapolis

241 West Washington Street

Indianapolis, IN 46204

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Description

The Annual FPWR Conference is a powerful experience combining education, networking and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in bringing treatments to market for our children.

Registration ends on Monday, August 21, 2017 at midnight EST. If you register at the conference, there will be a flat $25 late registration fee added.


Agenda

Thursday, August 24th*
Scientific Day 9 am - 5 pm
(This session is for researchers and academics, although parents are welcome to register)

Friday, August 25th
New Parent Session Pre-Conference Event** 3 pm – 5 pm
Family Meet n’ Greet 7 pm – 9 pm

Saturday, August 26th
Presentations 9:00 am – 5:00 pm,
Celebration Dinner 7:00 pm – 9:30 pm

Sunday, August 27th,
Breakfast 9:00 am – 10:00 am
Presentations 10:00 am – 12:00 pm


Confirmed presenters include:

  • Dr. Jennifer Miller (Endocrinology)
  • Dr. Harold Van Bosse (Orthopaedics)
  • Dr. Ann Scheimann (Gastroenterology)
  • Elizabeth Roof, M.A. - Senior Research Specialist (PWS Behavior Management Expert)
  • Sara Parker M.A., CCC-SLP (Pediatric Speech Pathologist and Feeding Specialist)


**New Parent Session
This special pre-conference session on Friday, August 25th is for parents who have received the PWS diagnosis within the last 24 months. Meet other new families and learn from parents who are on this same journey. Speakers to be announced soon. Space is limited, please RSVP during ticket purchase.

*FPWR’s Scientific Day
Thursday, August 24th, 9:00am-5:00pm
An exciting day of the latest breakthroughs in Prader-Willi syndrome research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience (researchers an academics). Parents are welcome to register. However, there will be a briefing of scientific day during the family conference. Learn more.

Childcare

FPWR offers a child care program for conference attendees. The program includes care for both Saturday and Sunday for $160/per child and includes snacks and lunch both days as well as dinner on Saturday evening (not including the Celebration Dinner. You can purchase a separate Celebration dinner ticket, if you would like your child to attend). All ages and abilities are welcome. Children's Conference Menu

Hotel Accommodations: The Westin, Indianapolis

A block of rooms is available for conference guests at the discounted rate of $149/night. Reservations may be made, modified or canceled at https://www.starwoodmeeting.com/Book/FPWR

Things to do around Indianapolis

Within Walking Distance
Visit Indy Guides and Maps
Children’s Museum





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Date and Time

Location

The Westin Indianapolis

241 West Washington Street

Indianapolis, IN 46204

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