2017 Florida Down Syndrome Conference
$49 – $69
2017 Florida Down Syndrome Conference

2017 Florida Down Syndrome Conference

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Nemours Children's Hospital

13535 Nemours Parkway

Orlando, FL 32827

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Florida Down Syndrome Conference 2016: Learning With Families, Advocates & Professionals



CONFERENCE OVERVIEW

This 2-day conference will present state-of-the-art information and best practices concerning

children and adults with Down Syndrome, their families, and professionals that serve them.

The pre-conference sessions, reception, and workshops are all designed to meet the needs of family members, educators, advocates, health care providers, and Self Advocates. The conference includes workshops intended to serve every audience.

The 10th Annual Florida Down Syndrome Conference … with nationally acclaimed speakers and resources!

Join us for another fun and information-filled two days. The 2017 conference kicks off with three in-depth pre-conference session options Friday afternoon. Directly following the preconference sessions, join us for the Friday night reception from 5-8:30 p.m. with honorary guests Dr. Peter Wearden, Department of Cardiovascular Services and Division of Cardiovascular Surgery Chair at Nemours Children’s Hospital, and Dr. Brian Skotko, Board-certified medical geneticist and Co-Director of the Down Syndrome Program at Massachusetts General Hospital featured in The Wall Street Journal, The New York Times, The Washington Post, The L.A. Times, NPR’s “On Point,” and ABC’s “Good Morning America.” At the same time, Self Advocates can enjoy the Spring Fling Dance Party. Beginning at 7:30 p.m., attendees can take advantage of an exclusive screening of the thought-provoking and controversial “A World Without Down’s Syndrome?” Saturday is packed with resources and information. The general conference includes national experts in advocacy, education, community living and health issues and a choice of SIXTEEN workshops conducted by experts in every aspect of Down syndrome. Side by side with the general conference is the Self Advocates Conference for adults with Down syndrome for ages 15 and up.



CONFERENCE DATES

Friday, February 10

2:00 p.m. - 8:30 p.m.

Saturday, February 11

8:00 a.m. - 5:30 p.m.


PRE-CONFERENCE SESSIONS

Friday, 2:00 - 5:00 p.m.

Attending a Pre-Conference session gives you the chance to spend three hours digging deep into one specific topic. The sessions, presented by nationally known speakers, are structured to include content that is research-based, share best practices, and provide proven “how to” strategies. All sessions will include time for Q & A. Pre-Conference sessions can be added to your conference registration for only $10!

Shake it Off – Effective, Relatable Strategies to Help Improve Behavior at All Ages and Stages

Stacy Taylor, M.A., B.C.B.A., President and Clinical Director, Advance Behavior and Learning, daughter with DS, Oviedo, FL

Behavior can be frustrating, but there is a science to learning and behavior that can help parents understand how to better address behavioral concerns no matter the age or stage of their child. These strategies don’t have to be complex or cumbersome. Some tips involve prevention, some focus more on effective consequences and, of course, we always want to focus on teaching. Come and learn about new tools for your behavior toolbox that you can understand and use!

Keeping Children And Adolescents With Down Syndrome Healthy: All The Medical Updates That Parents Need To Know

Dr. Brian Skotko, M.D., M.P.P., Board-certified medical geneticist and Co-Director of the Down Syndrome Program at Massachusetts General Hospital

In this presentation, Dr. Brian Skotko reviews all of the questions and concerns that parents most often have about their sons and daughters with Down syndrome. He provides the answers and action steps, stemming from the latest clinical research on people with Down syndrome. Based on his clinical experience in the Down Syndrome Program at Massachusetts General Hospital, Dr. Skotko makes sure that every parent can anticipate medical conditions so that the potentials of all people with Down syndrome are maximized.

IEP from A to Z… Everything you need to know!

This workshop is for parents with children in the public school system or looking to enter the public school system with individualized education plans. Learn how IEP components interconnect and get information that will help you produce a comprehensive IEP plan. Attendees will leave informed, confident, and ready to support a child with an IEP.



SELF ADVOCATES CONFERENCE

Friday and Saturday

Don’t miss our Self Advocates Spring Fling! It’s a reception and dance party just for you—from 5-8 p.m. on Friday, February 10. Join us for food, fun, friendship and dancing. It is a great way to get to know each other before our day of fun and learning on Saturday! Saturday sessions run from 8:30 a.m. – 5:30 p.m., breakfast, lunch and snacks are included in your registration fee.

Supported by the College of Education and Human Performance at University of Central Florida and for adults with Down syndrome, ages 15 and up, our Self Advocates Conference will feature workshops ranging from advocacy to employment to healthy cooking and dance workouts. It is fun, enriching and empowering — with lots of volunteers to lend support. Care is taken to allow ALL participants to share and shine. Because of our commitment to preparing the best experience for our self-advocates, we are unable to accept onsite registration.


CONFERENCE PRICING

Includes Reception on Friday starting at 5 p.m.; Breakfast, Lunch, Snacks and Workshops on Saturday.

Early Bird Rates (Early Bird Rate available before January 6, 2017)

DSACF Member _________________________ $49.00

Non-Member ____________________________ $69.00

(become a member for only $20 at www.dsacf.org)

DSACF Member Self-Advocate ___________ $49.00

Non-Member Self-Advocate _______________ $69.00

(become a member for only $20 at www.dsacf.org)


Standard Rates (Standard Rates available January 6 - February 3, 2017)

DSACF Member _________________________ $69.00

Non-Member ____________________________ $89.00

(become a member for only $20 at www.dsacf.org)

DSACF Member Self-Advocate ___________ $59.00

Non-Member Self-Advocate _______________ $79.00

(become a member for only $20 at www.dsacf.org)


(Online Registration closes February 3, 2017)

Onsite Registration ______________________ $99.00

TO REGISTER BY MAIL:

Make funds payable to: DSACF

Mail completed registration form and check to:

Down Syndrome Association of Central Florida

204 N. Wymore Road

Winter Park, FL 32789



WORKSHOP TOPICS TO BE COVERED AT THE 2016 FLORIDA DOWN SYNDROME CONFERENCE

  • ABLE Accounts (Achieving a Better Life Experience) and what they mean for your family.
  • Adult Siblings: Panel discussions, networking opportunities, and cutting edge research on medical decisions, living arrangements, guardianship options, financial questions, and lifestyle choices.
  • Adult Mental Wellness: The importance of keeping an active mind, information on self-talk, repetitive behaviors, and psychiatric disorders in people with Down syndrome.
  • Cardiac Issues in Children with Down Syndrome: Panel
  • Educational Options Panel: Homeschooling, private school, inclusion, special education, and types of scholarships available. Get comprehensive education information specific to each educational option.
  • Gastrointestinal Motility Disorders in Children with Down Syndrome
  • Guardianship: What EVERY parent needs to prepare for their child turning 18.
  • How to Best Support Your Patients with Down Syndrome: for Healthcare Professionals
  • Independent and Supported Living Options Panel: Group homes, supported living complexes (feat. Debbie Revels from DSA Jacksonville to speak on Jacksonville Ark Village), in-home supports and more.
  • Nutrition: Eat Right, Future Bright: Tricks for Healthy Habits and a Healthy Weight
  • Navigating and Organizing Medical Insurance for Families: How not to fall off the cliff when climbing the mountain
  • Obstructive Sleep Apnea in Individuals with Down Syndrome: A Comprehensive Approach
  • Puberty, Sexuality, and Relationships for Teens and Adults.
  • What Comes After High School? Panel: Employment, college, and other opportunities… identify your son or daughter’s strengths and how they can best utilize them.
  • Speech: Therapy, language, oral motor, articulation, and everything else you want to know about speech!
  • Sibling Issues For Parents… What Your Other Children Are Thinking.

Anyone is welcome to join any workshop—no need to preregister for specific tracks.



SCHEDULE

FRIDAY, FEBRUARY 10, 2017 2:00 p.m.—8:00 p.m.

1:30 - 2:00 p.m. Pre-conference Registration Check-in

2:00 - 5:00 p.m. Pre-Conference Sessions: Shake it Off – Effective, Relatable Strategies to Help Improve Behavior at All Ages and Stages; Keeping Children And Adolescents With Down Syndrome Healthy: All The Medical Updates That Parents Need To Know; IEP Basics… Everything you need to know!

5:00 - 8:30 p.m. Opening Reception, featuring honorary guests Dr. Peter Wearden and Dr. Brian Skotko

5:00 - 8:30 p.m. Spring Fling and Dance Party for Self-Advocates

7:30 - 8:30 p.m. Screening of “A World Without Down’s Syndrome?”

SATURDAY, FEBRUARY 28, 2015 8:00 a.m.—5:30 p.m.

8 – 8:30 a.m. REGISTRATION/Check-in and Breakfast

8:25 a.m. Prize Giveaway

8:30 a.m. Welcome by Janet Caramello and Mary Beth Eliason, DSACF, Dr. Peter Weardon, Nemours Children’s Hospital

8:40 a.m. “Inclusion Beyond the Classroom”

9 a.m. “Celebrating Life with Down Syndrome” Dr. Brian Skotko

All people with Down syndrome have talents and treasures to share with their communities. In this presentation, Brian Skotko draws upon success stories in his co-authored national award-winning book, Common Threads: Celebrating Life with Down Syndrome, to enable parents, professionals, and friends to discover the potential of all persons with chromosomal differences

10:00 a.m. - 11:15 a.m. Workshop Sessions A

11:30 a.m. - 12:45 p.m. Workshop Sessions B

12:45 p.m. - 2:30 p.m. LUNCH

Self-Advocate Keynote Speaker Patricia Moody, The Happy Advocate

Patricia Moody is an advocate for those with developmental disabilities, specifically Down syndrome. Not only is she a nationally acclaimed speaker, but she also has a career in sign language and singing. Patricia has taught sign language to students with developmental disabilities for years. In addition, she donates her lovely singing voice to special events such as the American Cancer Society, Special Olympics, March of Dimes, and Autism Speaks. Patricia’s latest accomplishment was becoming one of the pioneer students in the University of Central Florida’s Inclusive Post-Secondary Education program.

Community Champions Awards Presentation, Jim Payne, Master of Ceremonies

2:45 p.m. - 3:30 p.m. Workshop Sessions C

3:45 p.m. - 5:00 p.m. Workshop Sessions D

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Nemours Children's Hospital

13535 Nemours Parkway

Orlando, FL 32827

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