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2012 Parade of Cherubs in Washington DC

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness & Support

Thursday, April 19, 2012 at 10:00 AM - Friday, April 20, 2012 at 4:00 PM (EDT)

2012 Parade of Cherubs in Washington DC

Ticket Information

Ticket Type Sales End Price Fee Quantity
Parade Participant (April 19)
You MUST register to walk in the parade with us.
Ended Free $0.00
Capitol Tour (April 19)   more info Ended Free $0.00
White House Tour (April 20)   more info Ended Free $0.00
Purchase Your Save The Cherubs Parade Poster
We will only have 1 poster available at the event with your cherub's photo IF you submitted a photo to us in time! You are loaned the poster to carry during the parade. You can purchase it from us at $5.00 to cover our printing cost so we can reorder it to use at future events. You can also get the graphic from us for free and order your own.
Ended $5.00 $0.00
Enamel CDH Awareness Ribbon
You MUST pre-order. We will not have extras on hand at the event to sell.
Ended $4.00 $0.00
CDH Awareness Bracelet - Adult Blue
You MUST pre-order. We will not have extras on hand at the event to sell.
Ended $4.00 $0.00
CDH Awareness Bracelet - Adult Pink
You MUST pre-order. We will not have extras on hand at the event to sell.
Ended $4.00 $0.00
CDH Awareness Bracelet - Adult Yellow
You MUST pre-order. We will not have extras on hand at the event to sell.
Ended $4.00 $0.00
CDH Awareness Bracelet - Child Blue
You MUST pre-order. We will not have extras on hand at the event to sell.
Ended $4.00 $0.00
CDH Awareness Bracelet - Child Pink
You MUST pre-order. We will not have extras on hand at the event to sell.
Ended $4.00 $0.00
CDH Awareness Bracelet - Child Yellow
You MUST pre-order. We will not have extras on hand at the event to sell.
Ended $4.00 $0.00
Set of 3 CDH Awareness Bracelets (Blue, Pink, Yellow) - Adult
You must pre-order!
Ended $10.00 $0.00
Set of 3 CDH Awareness Bracelets (Blue, Pink, Yellow) - Child
You must pre-order!
Ended $10.00 $0.00

Share 2012 Parade of Cherubs in Washington DC

Event Details

 April 19th Parade of Cherubs in Washington DC

International Congenital Diaphragmatic Hernia Awareness Daily Celebration



Join us as we march in the Parade of Cherubs from the Lincoln Memorial to the Washington Monument to Capitol Hill where we will meet with Congress and raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill.   Everyone is welcome to participate. 
 

 
Facebook Event page - keep up with the latest news at http://www.facebook.com/events/348096015213783/
 
 


What - we will march 2.7 miles from the Lincoln Memorial to the Washington Monument, past the White House to Capitol Hill.  At Capitol Hill, we will tour and meet with Senator Jefferson Sessions, sponsor of our CDH Research Bill.   Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

Who Can Participate - anyone who wants to raise CDH Awareness. Please register with us to participate!

What to Wear:
  • Event t-shirts are for sale.  50% of proceeds will go to the local Children's Hospital CDH Research team.  The remaining 50% will go to CHERUBS CDH charity.  Order via your registration check out here.   Shirts must be ordered by March 31st!
  • CDH Awareness gear, the official CDH Awareness Ribbon.
  • All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes!

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - you can borrow wings at breakfast at the hotel at 8:00 on April 19th or purchase your own wings at http://www.savethecherubs.org

Accomodations - see details below!

Special thanks to Mandy Sroka Photography for being our official photographer for the even, Chic Events Productions for all their planning help and Alarm Security for sponsoring the wings!

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness!


CDH Kids Song

I'm a real live cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
He put it all back and here's where he fixed me!


Congential Diaphragmatic Hernia Research Bill
In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.
Sponsor - Sen. Jefferson Sessions

CDH affects 1600 babies in the United States every year, with a 50% mortality rate.  It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth.   The cause of Congenital Diaphragmatic Hernia is not known.   There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida.   More research funds are desperately needed and we are appealing to the United States government to help these babies.
  1. Look Up Your Congressmen To find his / her mailing address
  2. Download Letter to Send To Your Senator / Congressman
  3. Include The CDH Research Bill and a photo of  your cherub
  4. Sign the CDH Research Bill petition and ask others to sign as well!


Free Facebook Cover Banner:

CDH Awareness
 
 
 CDH Awareness
Order commemorative CDH Awareness Gear


Feel free to download this shirt graphic to raise CDH Awareness:

Congenital Diaphragmatic Hernia Awareness



Hotel Accomodations

 

We have selected two hotels for our event in April:
 
Hampton Inn & Suites Alexandria Old Town Area South
5821 Richmond Way
Alexandria, VA 22303
 
The primary hotel for the CHERUBS event will be the Hampton Inn and Suites.  The Hampton has offered our group an average rate of $149/night.  The rate will be charged at $189/night for Wednesday and Thursday stays and $109/night on Friday and Saturday stays.  The rate is available from April 18th – 22nd, 2012
 
To book a room call the hotel directly at 703-329-1400 and ask for the “CHERUBS” group rate on or before the group cut-off date of 3/19/2012. 
 
Reservations can also be made by calling Hampton Inn/Hilton’s central reservation line.  To book, call 1-800-426-7866 and request the “Hampton Inn & Suites Alexandria Old Town Area South” then request the Established Group Name of “CHERUBS” on or before the group cut-off date of 3/19/2012.
 
Individuals may cancel without penalty anytime up to 4:00 p.m. the day of arrival.  Cancelations made after 4:00 p.m will be charged a cancelation fee of one night.
 
The Hampton is located less than 1 mile from the Historic sections of Old Town Alexandria offers the following amenities:
·         Free hot breakfast bar
·         Free parking
·         Free internet
·         Free 24 hour shuttle service* to the Huntington Metro Station, Historic Old Town Alexandria and Reagan National Airport
 
*The shuttle is a 10 passenger van available for all hotel guests on a first come first serve basis.  Call the hotel directly for airport pickup.
 
Comfort Inn at the Pentagon
2480 South Glebe Road
Alexandria, VA 22206
 
The overflow hotel for the CHERUBS event will be the Comfort Inn.  The Comfort has offered our group a rate of $139/night.  The Comfort is not very close to local restaurants.  The rate is available from April 18th – 22nd, 2012
 
To book a room call the hotel directly at 703-682-5500 and ask for the “CHERUBS” group rate on or before the group cut-off date of 3/19/2012. 
 
Individuals may cancel without penalty anytime up to 24 hours prior to the day of arrival.  Cancelations made after less than 24 hours prior to arrival will be charged a cancelation fee of one night.
 
The Comfort is located in Alexandria and offers the following amenities:
·         Free hot breakfast bar
·         Free parking
·         Free wireless internet
·         Free shuttle service 6 a.m. until 10 p.m.* to the Pentagon City Metro Station and Reagan National Airport
 
*The shuttle is a 10 passenger van available for all hotel guests on a first come first serve basis.  Call the hotel directly for airport pickup.
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When & Where


Washington, DC

Thursday, April 19, 2012 at 10:00 AM - Friday, April 20, 2012 at 4:00 PM (EDT)


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Organizer

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness & Support

Our Organization:


CHERUBS is a 501(c)III organization located in North Carolina.   CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH).   As of 2015, we have over 5000 members in all 50 states and 60 countries.  Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH.  We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.

http://www.cdhsupport.org


What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.     The cause is not yet known.

Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues.

CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.

  Contact the Organizer

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