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Event Details
Many Experts. One Day. One Dream. Join Us.
FightSMA is pleased to invite you, our treasured friends in the SMA community,
to join us on Thursday, May 5th, 2011 for a monumental, first-ever event.
Thriving with SMA: LIVE!
Join us in Washington or from your desk
Realizing the Dream for 20 Years and going strong
Thursday, May 5, 2011
L’Enfant Plaza Hotel (Washington, DC) and broadcast live, worldwide!
9:00am EST – 2:00 PM EST
In this historic and significant series of panels, experts on orthopedics, pulmonary issues, nutrition and clinical trials will come together to share the latest updates in their field, answer questions from the audience (live and web participants), and once again unite the SMA community through knowledge and empowerment.
Each panel will consist of three to six elite specialists and experts, who are flying in from some of the most prestigious universities and institutions in the world. Please click here to view the panelist bios!
We invite you to join us for this exciting panel presentation. There is limited seating, so be sure to secure your reservation TODAY! We encourage commuters from the Northern Virginia/Maryland area to join us for the day, as well!
If you are unable to join us in person, FightSMA is pleased to announce that we will be live broadcasting the entire panel via webcast—for free! You and your family will be able to tune in, whether you’re in Los Angeles or London, New York or New Dehli. Tune in for the entire panel or drop in as you please.
Got Questions?
We’re accepting questions for the panelists starting today, so send in your questions by clicking here.
Schedule of Events
For families joining us in Washington, below is the schedule of events for the Families & Friends Conference:
Wednesday, May 4th, 2011
4:00 PM – Families and Friends Registration
6:00 PM – Families and Friends Dinner, with researchers and physicians for Q&A
Thursday, May 5th, 2011
8:00 AM – Breakfast
9:00 AM – Webinar I (Pulmonary/Respiratory Issues)
10:15 AM – Webinar II (Orthopedics)
11:30 AM – Webinar III (Nutrition)
12:00 PM – Complimentary Buffet Lunch
12:45 PM – Webinar IV (Clinical Trial)
2:00 PM – Wrap-Up of entire conference by Drs. Christian Lorson (University of Missouri- Columbia) and Alex Mackenzie (Children’s Hospital of Eastern Ontario)
Closing Ceremony
Attendee List
Sort by: Date | First Name | Last Name
When & Where
L'Enfant Plaza Hotel
Washington,
DC DC
Thursday, May 5, 2011 from 9:00 AM to 2:00 PM (ET)
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Hosted By
FightSMA
FightSMA is a 501c3 non-profit dedicated to finding a treatment or cure for spinal muscular atrophy (SMA), the number-one genetic killer of children under the age of two.
