We would be delighted if you and your friends would join us in this 1 mile fun walk/run created to raise awareness and fund research for a rarely diagnosed form of vasculitis known as Wegener's Granulomatosis.
When & Where
In September 2012, our director’s then 10-year-old daughter, Shaelyn, was diagnosed with a rarely diagnosed form of vasculitis called Granulomatosis with Polyangiitis (also known as Wegener’s Granulomatosis). The disease is especially rare in children. It attacked Shaelyn so quickly and severely that she went into end-stage renal failure after just a month and a half, forcing her to endure 4 hours of dialysis, 3 days a week. It was during this time that Shaelyn began thinking of ways to help others suffering. Her dream is to bring about public awareness of this and other forms of vasculitis. On June 5th, 2013, Shaelyn received a much needed kidney transplant. This has given her and her mother the free time and energy to concentrate on this newly formed non-profit organization.