Voices Carry: How History Informs Patient Advocacy in the Biotech Industry
Tuesday, April 15, 2014 from 5:30 PM to 8:00 PM
San Francisco, California
London, United Kingdom
During this 90-minute discussion presented by the Life Sciences Foundation and MassBio, a panel of biotech leaders will discuss how patient advocacy has played a pivotal role in shaping the biotech industry and how it informs and adds value to new therapies in development today. Moderated by Genzyme CEO David Meeker, panelists John Maraganore, Bill Haseltine, and Joan Finnegan Brooks who have each played roles in shaping the history of advocacy will share examples from the AIDS, cystic fibrosis and rare disease communities.
A few decades ago, patients depended solely on medical providers for disease information and they were often considered a nuisance by drug developers. Today, health and research information is broadly available and patient groups oftentimes collaborate with biotech companies and raise funds for research. Yet, patient protests still take place in response to high costs and limited access to certain medicines. This discussion will explore what the biotech industry can learn from the history and evolution of patient advocacy.
When & Where
Life Sciences Foundation
The Life Sciences Foundation is dedicated to capturing the history, preserving the heritage, and sharing the stories of biotechnology. The Foundation collects and organizes historical information to educate and inspire future innovators, to engage the general public, and to provide lay audiences with a robust understanding of life sciences and biotechnology.