During this 90-minute discussion presented by the Life Sciences Foundation and MassBio, a panel of biotech leaders will discuss how patient advocacy has played a pivotal role in shaping the biotech industry and how it informs and adds value to new therapies in development today. Moderated by Genzyme CEO David Meeker, panelists John Maraganore, Bill Haseltine, and Joan Finnegan Brooks who have each played roles in shaping the history of advocacy will share examples from the AIDS, cystic fibrosis and rare disease communities.
A few decades ago, patients depended solely on medical providers for disease information and they were often considered a nuisance by drug developers. Today, health and research information is broadly available and patient groups oftentimes collaborate with biotech companies and raise funds for research. Yet, patient protests still take place in response to high costs and limited access to certain medicines. This discussion will explore what the biotech industry can learn from the history and evolution of patient advocacy.
When & Where
Life Sciences Foundation
The Life Sciences Foundation (LSF) is a 501(c)(3) nonprofit organization focused on educating and inspiring curious minds with the history and continuing significance of biotechnology. LSF is capturing biotechnology's legacy by collecting, preserving, and sharing firsthand information about the people, organizations and discoveries that define biotechnology and reshape our world. As a steward of biotechnology's amazing history, LSF seeks to inspire the next generation of biotech pioneers and deepen the public's appreciation for the critical role that biotechnology plays in their lives.