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Take Charge and Make a Change

Lupus Foundation of America, DC/MD/VA Chapter

Saturday, October 5, 2013 from 11:00 AM to 2:00 PM (EDT)

Midlothian, VA

Take Charge and Make a Change

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Take Charge and Make a Change Forum

Presenters:

Delegate Christopher Peace 

Howard Hauptman, M.D.Good Samaritan Hospital, Baltimore, Maryland

Sara Gorman, Author of Despite Lupus


Morning: Legislative Issues of Relevance to the Lupus Community

Delegate Christopher Peace

Lupus does not discriminate between political parties.  Members of the lupus community comprise a bipartisan constituent base that must be informed about legislative issues directly affecting their health, their access to treatment, and the quality of their care.  Lupus is so complex that it creates many problems in the lives of patients and caregivers.  Each year, legislators deal with multiple issues that will ultimately impact the lives of those suffering with a chronic disease such as lupus.  It is vital that our constituents understand legislative issues currently under review and appreciate possible changes that will affect their health in years to come.   Understanding these complex issues helps them realize when they need to exercise their right to have a voice in the process.  


Lunch: Lunch and Learn about Lupus

Kevin Hicks M.D.

 

Lupus is complex.  Each patient experiences a unique combination of symptoms and undergoes a distinctive and individualized healthcare journey.  This Lunch and Learn session, facilitated by a Board Certified Rheumatologist will explain why lupus is mysterious and provide participants with actions they can take to manage the disease and improve quality of life. Time will be allotted for participant questions.


Afternoon: Finding Your Voice

Sara Gorman, Author of Despite Lupus

Lupus is mysterious, mainly because this invisible disease causes deadly organ damage and leaves no tangible evidence.  Each lupus story is unique, but it is also part of the overall mystery of lupus.  This session is designed to help constituents tell the story of their lupus journey in a concise, compelling way that conveys the cruel impact of this disease and illustrates why health care laws and support are needed to overcome barriers created by lupus.  Participants hear from others who have dealt with lupus for many years, and they will find creative ways to confidently tell their personal story and raise awareness about this brutal disease and its often-harsh consequences.

Have questions about Take Charge and Make a Change? Contact Lupus Foundation of America, DC/MD/VA Chapter

When & Where



Bon Secours St. Francis Medical Center Florence and Orvieto Room
13710 Saint Francis Boulevard
Midlothian, VA 23114

Saturday, October 5, 2013 from 11:00 AM to 2:00 PM (EDT)


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Organizer

Lupus Foundation of America, DC/MD/VA Chapter

Welcome to the Lupus Foundation of America, DC/MD/VA Chapter. Our chapter provides current information, education programs, and outreach services to improve the quality of lives for people with lupus while also supporting research. We support people with lupus throughout the District of Columbia, Maryland and Virginia.

2000 L Street, NW- Suite 415
Washington, DC  20036
(888) 787-5380
www.lupusdmv.org

info@lupusdmv.org

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