Take Charge and Make a Change
Saturday, September 14, 2013 from 11:00 AM to 2:00 PM (EDT)
Take Charge and Make a Change Forum
Gene Ransom III, CEO of the Maryland State Medical Society
Sara Gorman, Author of Despite Lupus
Sean Whelton, MD Georgetown University Hospital, Washington, DC
Morning: Legislative Issues of Relevance to the Lupus Community
Gene Ransom III
CEO of the Maryland State Medical Society
Lupus does not discriminate between political parties. Members of the lupus community comprise a bipartisan constituent base that must be informed about legislative issues directly affecting their health, their access to treatment, and the quality of their care. Lupus is so complex that it creates many problems in the lives of patients and caregivers. Each year, legislators deal with multiple issues that will ultimately impact the lives of those suffering with a chronic disease such as lupus. It is vital that our constituents understand legislative issues currently under review and appreciate possible changes that will affect their health in years to come. Understanding these complex issues helps them realize when they need to exercise their right to have a voice in the process.
Lunch: Lunch and Learn about Lupus
Sean A. Whelton, M.D.
Georgetown University Hospital, Washington, DC
Lupus is complex. Each patient experiences a unique combination of symptoms and undergoes a distinctive and individualized healthcare journey. This Lunch and Learn session, facilitated by a Board Certified Rheumatologist will explain why lupus is mysterious and provide participants with actions they can take to manage the disease and improve quality of life. Time will be allotted for participant questions.
Afternoon: Finding Your Voice
Author of Despite Lupus
Lupus is mysterious, mainly because this invisible disease causes deadly organ damage and leaves no tangible evidence. Each lupus story is unique, but it is also part of the overall mystery of lupus. This session is designed to help constituents tell the story of their lupus journey in a concise, compelling way that conveys the cruel impact of this disease and illustrates why health care laws and support are needed to overcome barriers created by lupus. Participants hear from others who have dealt with lupus for many years, and they will find creative ways to confidently tell their personal story and raise awareness about this brutal disease and its often-harsh consequences.
When & Where
Lupus Foundation of America, DC/MD/VA Chapter
Welcome to the Lupus Foundation of America, DC/MD/VA Chapter. Our chapter provides current information, education programs, and outreach services to improve the quality of lives for people with lupus while also supporting research. We support people with lupus throughout the District of Columbia, Maryland and Virginia.
2000 L Street, NW- Suite 415
Washington, DC 20036