You may apply for a partial travel scholarship to attend the
SCDAA SICKLE CELL ADVOCACY DAY
Courtesy of The Sickle Cell Assocation of New Jersey (SCANJ)
April 2-3, 2014
Preference is for New Jersey residents who have sickle cell disease, care for an immediate family member with sickle cell disease, or have volunteered for past SCANJ programs.
These are partial scholarships only and are subject to availability of funds.
Should you be selected your lodging at the Sheraton hotel will be provided from the SCANJ based on double occupancy as well as a travel stipend to support your attendance.
Application does not guarantee an award.
Notification of awards will be before March 30th
Call 973 482-9070 for more information on the SCANJ Advocates Program
Please join the Sickle Cell Disease Association of America, Inc. (SCDAA) as we advocate for those affected by Sickle Cell Disease. This year's SCDAA advocacy campaign will continue to strongly focus on the Re-authorization of the Sickle Cell Treatment Act! It will also include promoting stable funding, better healthcare access, expanded programs, and increased education and awareness for Sickle Cell Disease consumers, families and programs throughout our nation. We are looking forward to an exciting event that will feature:
Legislative Champion Meetings
Congressional Luncheon (by invitation only)
Collaborative with Federal Partners
Our 2014 Advocacy Day events will take place on April 2nd thru April 3rd. The host hotel for the event is the Sheraton Silver Spring Hotel, 8777 Georgia Ave. Silver Spring, MD 20910. Advocacy Day is on Capitol Hill, Washington DC.
April 2, 2014
Sheraton Silver Spring Hotel
8777 Georgia Ave Silver Spr ing, MD 20910
Welcome Reception 6:30 pm - 7:15 pm
Advocacy Training 7:15 pm - 8:45 pm
(All legislative materials will be distributed at this time)
April 3, 2014
Rayburn House Building
45 Independence Ave SW, Room B339-340 Washington, DC 20007
Champion and Partner Briefing 9:00 am - 10:30 am
Hill Visits Begin 10:30 am - until
Congressional Luncheon (invitation only) 11:30 am - 1:00 pm
Collaborative Meeting (Federal Partners) 1:30 pm - 2:30 pm
Hill Visits Continue 1:30 pm - until
*Agenda is subject to change*
The Sickle Cell Association of New Jersey (SCANJ) is here to help, educate, and advocate in the fight against sickle cell disease.
SCANJ is a 501c3 non profit community based agency established on September 1, 2009 to assist the sickle cell community, especially adults, with non - medical needs such as, support groups, transition, education, access to research, resource sharing, family follow up and other programs that improve the quality of life.
SCANJ works in partnership with dedicated health care professionals who provide much needed care for the sickle cell community and is open to individuals, sickle cell treatment centers, health care providers and organizations that support sickle cell disease services in the State of New Jersey.
Please help us by volunteering or making a tax deductible donation to SCANJ P.O. Box 9501 Newark, NJ 07104. Donations can also be made online through our website.
For more information go to
or call 973 482-9070
Mary Bentley LaMar, Founder
P.O. Box 9501 Newark NJ 07104
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