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Save a KD heart

The Faces of Kawasaki Disease

Saturday, July 13, 2013 from 12:00 PM to 6:00 PM (PDT)

Manorville, NY

Save a KD heart

Ticket Information

Ticket Type Sales End Price Fee Quantity
Admission LI Game Farm Ended $15.00 $1.82
Woodland Gardens Survivor's Celebration Ended
Can not attend but would like to make a donation? Ended

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Event Details

Come and explore Long Island's #1 animal park and zoo while benefiting a great cause. The Game Farm Wildlife and Chilren's Zoo features hundreds of zoo animals from dozens of different species, each of which has a unique story. Spend the afternoon outdoors enjoying Long Island's east end fresh air while bonding with your family. You will have the opportunity of this unique feature to touch and feed many different species of animals. Admission to the zoo is $16.82  p/p. Admission MUST be paid in advance as no admissions can be paid at the table. We will have a guest list containing the names of all who have paid in advance, once your name is confirmed, then you will receive a bracelet which will allow unlimited admission to the park the day of our event. If admission is paid directly to me, not through this website, then cost would be $15. Fundraiser hours are 12-6pm. 

Animals featured at the gamefarm include an 18 ft giraffe, kangaroos, kinkajous, cougars, sheep, peacocks, lemurs, and other exotic and indigenous breeds. They have a variety of monkeys, buffalo, colorful parrots, a zebra, aoudads, camels, an ostrich, alligators andmany more. Don't forget to visit the farms Old MacDonald's farm yard, where your little ones have a chance to feed baby farm animals. "Please Touch" is their motto! The Game Farm also features carnival style rides, pony rides and if that's not enough, then please join us in the parks Woodland Garden's (next to the main entrance) for a special survivor's celebration from 1-3pm where you can enjoy a light refreshment, activities & games, music and a fun chinese auction. Admission to the celebration is free with a suggested donation. Donors will receive a raffle ticket good for any item in our Chinese Auction. Bring a small children's toy or activity to reveive more raffle tickets. All items will be donated to Stony Brook Children's Hospital Pediatric Floor. (Items may include play dough, stickers, tattoos, crayons, puzzles, etc.) 

If there are any vendors interested in setting up a booth during our celebration, please contact Linda (631) 574-5779 or Juan (631) 578-7703. If you would like to be a sponsor, please do the same. Thank you. 



ALL PROCEEDS RAISED WILL GO TOWARDS RESEARCH FOR A DIAGNOSTIC TEST FOR KAWASAKI DISEASE. 
Have questions about Save a KD heart? Contact The Faces of Kawasaki Disease

When & Where


The Long Island Game Farm
489 Chapman Blvd
Manorville, NY 11949

Saturday, July 13, 2013 from 12:00 PM to 6:00 PM (PDT)


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Organizer

The Faces of Kawasaki Disease

TFKD is a parent and survivor organization created to raise awareness of Kawasaki disease while raising action amongst the KD community through acknowledgment and fundraising. Visit us at www.thefacesofkd.com or like us on Facebook https://www.facebook.com/thefacesofkd.
Mission
"To improve the health of children by preventing lasting heart damage or death from Kawasaki disease. We carry out this mission through awareness, community services, education, fundraising and advocacy to save children’s hearts. The Faces of Kawasaki disease team members, volunteers, researchers and Kawasaki disease advocates work together to give all children who are diagnosed with Kawasaki disease a fighting chance against the threats to their health: heart damage, misdiagnosis, or death."
Description
The faces of Kawasaki disease is a page built by mothers of KD children to provide a place for parents to join in thought, feeling and action. As mothers of children who have suffered from Kawasaki disease we understand the necessity and comfort that comes when sharing our children stories with others, as well as the urge to want to be involved in raising awareness of this mysterious disease, while getting to know other KD parents. Therefore, this site will aim to continue to raise awareness of KD, to acknowledge the many KD advocates and parents that have continuously dedicated much of their time to inform the public on KD, and to raise action amongst KD advocates, parents and survivors. In short, this is a place where all the faces of Kawasaki disease can come together and share their experiences with KD. 


Our story

In the summer of 2008, my youngest child was diagnosed and hospitalized with Kawasaki Disease. After about a week of symptoms which included  fevers, a rash, diarrhea, irritablity, red mouth including lips and tongue, swollen glands  and red blood shot eyes; we were admitted to Stony Brook Children's Hospital where Johnny was treated with an IVIG which is an intravenous immunoglobulin that contains the pooled immunoglobulin G from the plasma of approximately a thousand or more blood donors. Within 6 months of diagnosis, Johnny developed multiple coronary aneurysms and was placed on a blood thinner in addition to his aspirin treament. We were notified that giant aneurysms rarely heal after 2 years. Yet last spring, almost 4 years after Johnny's battle with KD, his coronary arteries had healed. We decided then that we would host an annual celebration fundraiser and this year, we expect to have a survivor's celebration where Johnny will have the opportunity to meet with other child survivors of Kawasaki Disease for the very first time. Though Johnny does not currently have corornary invovlement, he will need to be under the care of a cardiologist for the rest of his life. Being that his aneurysms were so large, it is my understanding that his chances of developing Ischemic heart disease is increase by over 40%. Johnny still experiences chronic and sometimes severe joint pain, asthma and a weakened immune system which are no doubt after affects of his battle with Kawasaki Disease.  In 2011, I became a member of  The Faces of Kawasaki Disease. That same year, I began fundraising for the foundation and worked hard to be an advocate, educating the public about the risks of Kawasaki Disease and it's unpredictability. My mission is to save a childs heart and spare a parents. I never imagined that my sons first heart break would come at the young age of 20 months old and the culprit not being a young lady, but a disease. 

Regards, 
Linda D. Volpe 
Kawasaki Disease Advocate
Mother of a Survivor



Kawasaki Disease is a very serious illness that is characterized by an inflammation of blood vessels though out the body. KD mainly affects children, with a higher occurance in boys. It is the leading cause of acquired children's heart disease in America, it affects children of ALL backgrounds, there is no specific test to diagnose KD and it IS on the rise. There is no known cause for KD although an agent like a virus is suspected of wreaking havoc in the bodies of children with a genetic predispotion toward the disease. This being the case, siblings of KD kids are more likely to become sickened with the disease and although rare, children can battle KD more than once. Should KD kids decide to become parents, their children will have a higher risk of developing KD as well. When dealing with Kawasaki Disease, there are often more questions then there are answers which is why awareness and fundraising is so important. Help us save lives and hearts by paving the way to discovery and recovery.
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