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“Quality of Life for the Children” 2009 DCPPCC Third Annual Pediatric Palliative Care Conference

District of Columbia Pediatric Palliative Care Collaboration

Friday, September 11, 2009 at 8:00 AM - Saturday, September 12, 2009 at 5:00 PM (EDT)

Washington, DC

“Quality of Life for the Children”  2009 DCPPCC Third...

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September 11 & 12 - Marriott Washington - Washington D.C

Quality of Life for the Children

The 2009 Quality of Life for the Children once again brings together national and international experts in providing comprehensive care to children and their families with life-limiting and life-threatening illnesses to address the knowledge gap of healthcare professionals in pediatric palliative care. The conference will disseminate state of the art information on quality of care for these children and their families. Using this approach we hope to improve the knowledge and effectiveness of the care they provide, regardless of discipline or environment especially in relationship to advanced pain management, as well as the management of dyspnea, neuro-irritability and fatigue, communication techniques, and alternative medicine methods and practices.

So please join us for the third year of Quality of Life for the Children, a highly informative pediatric palliative care conference created for healthcare professionals of all disciplines who want to improve the quality and effectiveness of the care they provide for our seriously ill children.

The conference will be held September 11 & 12, 2009 at Marriott Washington, Washington, DC. You’ll hear presentations by internationally recognized experts on pediatric palliative care from the institutions leading the field in practice and research, including: Children’s Institute for Pain and Palliative Care, Children’s Hospitals & Clinics of Minnesota, Children’s Hospital of Philadephia, Children’s National Medical Center, and Georgetown University Medical Center, to name a few. Attendees of the conference can expect to:

  • Describe suffering in pediatric palliative care from the patient, family and professional caregiver standpoint;
  • Discuss the dimensions that encompass quality care in pediatric palliative care;
  • Increase knowledge on the state of the art pain management in pediatric palliative care;
  • Develop skill in opioid titration and conversion for children with life-limiting illness;
  • Develop skill with alternative methods of pain management for children with life-limiting illness;
  • List types of effective complementary therapies for children with life-limiting illness;
  • Illustrate methods of communication for challenging conversations with children and their families;
  • Describe dyspnea and methods of treatment in pediatric palliative care;
  • Discuss the interaction of medical, legal and ethical issues in pediatric palliative care and the problems and complications inherent in these issues.

Featured Presenters

  • Ann Berger, MD, Pain & Palliative Medicine, NIH
  • Amani Babgi, PhD, RN, Noorah Oncology Center, King Abdul Aziz Medical City
  • Christopher Feudtner, MD, PhD, MPH, Children’s Hospital of Philadelphia
  • Stefan J. Friedrichsdorf, MD, Children’s Institute for Pain and Palliative Care, Children’s Hospitals and Clinics of Minnesota
  • Sarah Friebert, MD, FAAP, FAAHPM, Haslinger Division of Pediatric Palliative Care, Akron Children’s Hospital
  • Carlos F. Gomez, MD, PhD, Medical Director DCPPCC
  • Julie Hauer, MD, University of Minnesota Children’s Hospital, Gilette Children’s Specialty Healthcare
  • Pamela S. Hinds, PhD, RN Director of Research, Children’s National Medical Center
  • Susan K. Rogers, MS, BSN, RN, CHPN, Executive Director, DCPPCC
  • Brian Rood, PANDA Care Team, Children’s National Medical Center, Washington, DC
  • Aziza Shad, MD, Pediatric Hematology/Oncology, Georgetown University Hospital
  • Carol Taylor, RN, PhD, Director Center for Clinical Bioethics, Georgetown University
  • Christy Torkildson, RN, PHN, MSN, PhD candidate, University of California San Francisco
  • Mary Wheeler, MSN, RN, ACHPN, The Washington Home and Community Hospice, Washington, DC
  • Christina Ullrich, MD, Dana Farber Cancer Institute, Boston, Massaschusetts
  • Daniel Wilson, LCSW, Private Practice
Have questions about “Quality of Life for the Children” 2009 DCPPCC Third Annual Pediatric Palliative Care Conference? Contact District of Columbia Pediatric Palliative Care Collaboration

When & Where



Marriott Washington
1221 22nd Street, NW
Washington, DC 20037

Friday, September 11, 2009 at 8:00 AM - Saturday, September 12, 2009 at 5:00 PM (EDT)


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Organizer

District of Columbia Pediatric Palliative Care Collaboration

Website: www.dcppcc.org

Tel: 202.895.0191
Fax: 202.895.0170 

The District of Columbia Pediatric Palliative Care Collaboration is a cooperative venture of three health care organizations in Washington, D.C. that seeks to provide comprehensive care to children and families facing life-threatening and life-limiting illnesses. The partners in this project have pooled resources to provide a full range of services to the community, including:

• Comprehensive home hospice

• Inpatient palliative care consultation

• Psychosocial support, counseling, and bereavement services

• Education and research in pediatric palliative care. 

 

  Contact the Organizer

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