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National Sickle Cell Advocacy Day 2014

Sickle Cell Disease Association of America, Inc.

Wednesday, April 2, 2014 at 6:00 PM - Thursday, April 3, 2014 at 5:00 PM (EDT)

Silver Spring, MD

National Sickle Cell Advocacy Day 2014

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SCDAA Advocacy Day Ended Free  

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 Join Us!

Please join the Sickle Cell Disease Association of America, Inc. (SCDAA) as we advocate for those affected by Sickle Cell Disease. This year's SCDAA advocacy campaign will continue to strongly focus on the Re-authorization of the Sickle Cell Treatment Act! It will also include promoting stable funding, better healthcare access, expanded programs, and increased education and awareness for Sickle Cell Disease consumers, families and programs throughout our nation. We are looking forward to an exciting event that will feature:

    • Welcome Reception
    • Advocacy Training
    • Legislative Champion Meetings
    • Congressional Luncheon (by invitation only)
    • Collaborative with Federal Partners

Our 2014 Advocacy Day events will take place on April 2nd thru April 3rd. The host hotel for the event is the Sheraton Silver Spring Hotel, 8777 Georgia Ave. Silver Spring, MD 20910.

AGENDA

April 2, 2014
Sheraton Silver Spring Hotel
8777 Georgia Ave Silver Spring, MD 20910

Welcome Reception                                                6:30 pm - 7:15 pm
Advocacy Training                                                   7:15 pm - 8:45 pm
(All legislative materials will be distributed at this time)

April 3, 2014
Rayburn House Building
45 Independence Ave SW, Room B339-340 Washington, DC 20007

Champion and Partner Briefing                                9:00 am - 10:30 am
Hill Visits Begin                                                       10:30 am - until
Congressional Luncheon (invitation only)               11:30 am - 1:00 pm
Collaborative Meeting (Federal Partners)               1:30 pm - 2:30 pm
Hill Visits Continue                                                  1:30 pm - until

*Agenda is subject to change*

Please begin contacting your legislative representatives, both House and Senate,
to schedule appointments with them. Assistance is available, if needed.



Room rates are $149 per night, plus tax. All attendees are responsible for their own room and travel. This special rate is available for rooms booked by Friday, March 14, 2014.


REGISTER TODAY

Please contact us with any questions at: scdaa@sicklecelldisease.org
Have questions about National Sickle Cell Advocacy Day 2014? Contact Sickle Cell Disease Association of America, Inc.

When & Where


Sheraton Silver Spring Hotel
8777 Georgia Avenue
Silver Spring, MD 20910

Wednesday, April 2, 2014 at 6:00 PM - Thursday, April 3, 2014 at 5:00 PM (EDT)


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