San Francisco, California
London, United Kingdom
Movement Disorders Study Day
SAVE THE DATE
Thursday 3rd November 2016 9.30am – 3.30pm
Education Centre, Morriston Hospital, Swansea
Meeting free of charge but registration essential - spaces limited
Who would benefit from attending the event?
This is an inaugural event for Welsh patients and healthcare professionals to gain a greater overview and understanding of movement disorder conditions, their management and treatment. It will be beneficial for GP’s, secondary care clinicians as well as nurses, allied health professionals and professionals in training to attend.
About Movement Disorders
Movement Disorders are neurological conditions that affect the speed, fluency, quality and ease of movement. Abnormal fluency or speed of movement (called dyskinesia) may involve excessive or involuntary movement (hyperkinesia) or slowed or absent voluntary movement (hypokinesia).
This session will focus on a number of disorders within this group including:
- Restless Legs Syndrome (RLS) and reflex sympathetic dystrophy/ periodic limb movement disorder (RSD/ PLMD)
- Ataxia (lack of coordination, often producing jerky movements)
- Dystonia (causes involuntary movement and prolonged muscle contraction)
- Huntington's Disease (also called chronic progressive chorea)
The event will include eminent speakers who specialise in treating patients with this set of conditions. The event will be a unique opportunity to meet and network with professionals in the field as well as patients and patient organisation representatives and to gain a greater understanding of the challenges and opportunities for patients affected by these conditions.
For more information, please contact Carol Ross- South West Wales Neurological Alliance: firstname.lastname@example.org.
Programme (subject to change)
09.30 – 10.00 Registration/ Tea & Coffee
10.00 – 10.10 Welcome & Introduction
Carol Ross, Secretary of South West Wales Neurological Alliance
10.10 – 10.30 South Wales Update on Neurological Delivery Plan
10.30 – 11.00 Management and treatment of patients with movement disorders
Dr Kathryn Peel, Clinical Lecturer & Specialist Registrar in
Neurology, Institute of Psychological Medicine &
Clinical Neuroscience, Cardiff University
11.00 - 11.20 Tea/ Coffee break and networking
11.20 – 11.50 Access to specialist movement disorders clinics
Dr Reem Amin, Senior Trainee Neurologist, West Wales
11.50 - 12.20 The importance of Neurophysio care in movement disorders
Richard Pawsey, Lead Neurophysio, ABMU
12.20 - 12.50 Panel Discussion
12.50 – 13.30 Lunch, networking & patient organisation stands
13.30 - 14.10 Overview of education in Movement Disorders to Paramedics &
Emergency Unit staff
Andrew Jenkins, Assistant Clinical Director &
Consultant Paramedic, Welsh Ambulance Service
Dr Andy McNab, Neuroconsultant, ABMU
14.10 - 15.10 Clinical & patient perspectives of living with movement disorders
including the role of the specialist nurse
- Alan Thomas, Patient affected by Ataxia
- Carol Ross, Patient affected by Restless Legs Syndrome
- Julie Thomas, Specialist Epilepsy Nurse
- Kay Holmes, Specialist Huntingdons Disease Advisor
15.10 - 15.30 Closing remarks and moving forward
NB. Please inform us if you are no longer able to attend so your space can be re-allocated.
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When & Where
Emma Hughes, Genetic Alliance UK/ Rare Disease UK
Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions. We are an alliance of over 180 patient organisations.