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Movement Disorders Study Day

Emma Hughes, Genetic Alliance UK/ Rare Disease UK

Thursday, November 3, 2016 from 9:30 AM to 3:30 PM (GMT)

Movement Disorders Study Day

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Type Remaining End Quantity
Movement Disorders Study Day 82 Tickets Oct 20, 2016 Free  

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Event Details

Movement Disorders Study Day


Thursday 3rd November 2016     9.30am – 3.30pm

Education Centre, Morriston Hospital, Swansea

Meeting free of charge but registration essential - spaces limited

Who would benefit from attending the event?

This is an inaugural event for Welsh patients and healthcare professionals to gain a greater overview and understanding of movement disorder conditions, their management and treatment. It will be beneficial for GP’s, secondary care clinicians as well as nurses, allied health professionals and professionals in training to attend.

About Movement Disorders

Movement Disorders are neurological conditions that affect the speed, fluency, quality and ease of movement. Abnormal fluency or speed of movement (called dyskinesia) may involve excessive or involuntary movement (hyperkinesia) or slowed or absent voluntary movement (hypokinesia). 

This session will focus on a number of disorders within this group including:

  • Restless Legs Syndrome (RLS) and reflex sympathetic dystrophy/ periodic limb movement disorder (RSD/ PLMD)
  • Ataxia (lack of coordination, often producing jerky movements)
  • Dystonia (causes involuntary movement and prolonged muscle contraction)
  • Huntington's Disease (also called chronic progressive chorea)
  • Epilepsy

The event will include eminent speakers who specialise in treating patients with this set of conditions.  The event will be a unique opportunity to meet and network with professionals in the field as well as patients and patient organisation representatives and to gain a greater understanding of the challenges and opportunities for patients affected by these conditions.  

For more information, please contact Carol Ross- South West Wales Neurological Alliance: support@swwna.com.

Programme (subject to change)

09.30 – 10.00              Registration/ Tea & Coffee  

10.00 – 10.10              Welcome & Introduction                                       
                                   Carol Ross, Secretary of South West Wales Neurological Alliance

10.10 – 10.30              South Wales Update on Neurological Delivery Plan
                                   ABMU Representative       
10.30 – 11.00              Management and treatment of patients with movement disorders
                                   Dr Kathryn Peel, Clinical Lecturer & Specialist Registrar in
                                   Neurology, Institute of Psychological Medicine &
                                   Clinical Neuroscience, Cardiff University

11.00 - 11.20               Tea/ Coffee break and networking

11.20 – 11.50              Access to specialist movement disorders clinics
                                   Dr Reem Amin, Senior Trainee Neurologist, West Wales

11.50 - 12.20               The importance of Neurophysio care in movement disorders
                                   Richard Pawsey, Lead Neurophysio, ABMU

12.20 - 12.50               Panel Discussion

12.50 – 13.30              Lunch, networking & patient organisation stands

13.30 - 14.10               Overview of education in Movement Disorders to Paramedics & 
                                   Emergency Unit staff
                                   Andrew Jenkins, Assistant Clinical Director &
                                   Consultant Paramedic, 
Welsh Ambulance Service
                                   Dr Andy McNab, Neuroconsultant, ABMU

14.10 - 15.10              Clinical & patient perspectives of living with movement disorders 
                                   including the role of the specialist nurse 

  • Alan Thomas, Patient affected by Ataxia
  • Carol Ross, Patient affected by Restless Legs Syndrome
  • Julie Thomas, Specialist Epilepsy Nurse
  • Kay Holmes, Specialist Huntingdons Disease Advisor

15.10 - 15.30               Closing remarks and moving forward


NB. Please inform us if you are no longer able to attend so your space can be re-allocated.


Have questions about Movement Disorders Study Day? Contact Emma Hughes, Genetic Alliance UK/ Rare Disease UK

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When & Where

Education Centre
Morriston Hospital
Heol Maes Eglwys
SA6 6NL Morriston, Swansea
United Kingdom

Thursday, November 3, 2016 from 9:30 AM to 3:30 PM (GMT)

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Emma Hughes, Genetic Alliance UK/ Rare Disease UK

Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions. We are an alliance of over 180 patient organisations.

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