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KCNQ2 Denver Summit

Scotty Sims and Jim Johnson

Thursday, September 18, 2014 at 1:00 PM - Friday, September 19, 2014 at 5:00 PM (MDT)

Registration Information

Type End Quantity
Professional Ended Free  
Parent Ended Free  
Family Member Ended Free  
Child Ended Free  
Other Ended Free  

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Event Details

Scotty Sims and Jim Johnson are proud to present the 1st KCNQ2 Family and Professional Summit in collaboration with The Jack Pribaz Foundation September 18th – 19th in Denver, Colorado. 

The Summit will bring families together with leading clinicians and researchers to discuss new developments in KCNQ2 Encephalopathy and associated intractable childhood epilepsies. The event will include multiple topics, as well as a professional-to-professional roundtable and opportunities for families to socialize.  

For those who are not able to attend we will be streaming live both Thursday and Friday’s sessions.  Streaming info will be added a few days before the Summit.  If you will be streaming you still need to register and click on the option that you will not be attending, but will be streaming. 

 

 THURSDAY, September 18, 2014 FAMILY TRACK

Target Audience: KCNQ2 Families, Caregivers, Professionals looking for basic information on KCNQ2

11:30 am – 12:45 pm

Optional Lunch at The Berkshire

7352 E 29th Ave, Denver, CO 80238

1:00 pm – 1:15 pm

Welcome and Introduction

DoubleTree Hotel

3203 Quebec Street

Denver, CO

1:15 pm – 1:30 pm

A siblings and parent perspective

Sophie and Sara Butcher

1:30 pm – 2:00 pm

KCNQ2

Q&A

Kristen Park, MD

2:00 pm – 2:15 pm

BREAK

2:15 pm – 3:30 pm

KCNQ2 101

Q&A

Edward Cooper, MD, PH.D

 

3:30 pm – 4:15 pm

KCNQ2 Clinical

Q&A

John Millichap, MD

4:15 pm – 4:30 pm

BREAK

4:30 pm – 5:15 pm

KCNQ2 Research

Q&A

Sarah Weckhuysen, MD, PH.D

5:30 pm – 7:30 pm

Families and Professional Dinner Social

 

Dinner Provided

Double Tree Denver

 

 

FRIDAY, September 19, 2014 PROFESSIONAL AND FAMILY TRACK

Target Audience: KCNQ2 Families, Researchers, Physicians, Nurses, Caregivers

8:00 am – 9:00 am

Registration and Breakfast

Children’s Hospital Colorado

Boardroom

9:00 am – 9:15 am

Welcome and Introduction

Kristen Park, MD

9:15 am – 10:15 am

KCNQ2 Gene Discovery, Mechanisms of Epilepsy

Q&A

Sarah Weckhuysen, MD, PH.D

10:15 am – 10:30 am

BREAK

10:30 am – 11:30 am

Epileptic Encephalopathies

Q&A

Kristen Park, MD

11:30 am – 12:30 pm

LUNCH

12:30 pm – 1:15 pm

KCNQ2 Clinical Phenotype

Q&A


John Millichap, MD

1:15 pm – 2:15 pm

KCNQ2 Research

Q&A

Edward Cooper, MD, PH.D

2:15 pm – 2:30 pm

BREAK

2:30 pm – 3:30 pm

Round Table/Q&A

Kristen Park, MD

Edward Cooper, MD, PH.D

Sarah Weckhuysen, MD, PH.D

John Millichap, MD

3:30 pm – 4:15 pm

KCNQ2 encephalopathy: an emerging disease within the epileptic encephalopathies

Q&A

Ingrid Scheffer, MD, PH.D

 

FAQs

Where can I contact the organizer with any questions?

You may contact Scotty Sims at scottyandjim@yahoo.com or

Kristen Park, MD at Kristen.Park@childrenscolorado.org

What Hotel should I use?

We have a block of rooms reserved for a special price under the name "KCNQ2".  We have 20 rooms with a combination of Handicap accessible rooms and standard rooms.  If you call and the rooms are all filled please contact scottyandjim@yahoo.com.

DoubleTree by Hilton Hotel Denver
3203 Quebec St
Denver, CO 80207

Reservations 303-321-3333- KCNQ2 $84 per night or utilize the link below

http://doubletree.hilton.com/en/dt/groups/personalized/R/RLDV-DT-KCN-20140918/index.jhtml?WT.mc_id=POG

Amenities:
Complimentary shuttle transportation to and from Denver International Airport every 30 minutes starting at 4:30AM-12:15AM daily- we are located 20-30 minutes from the airport (17 miles).  If a wheel chair lift is needed for pickup from the airport please call the hotel in advance.

Complimentary shuttle transportation to Northfield on scheduled times in the afternoon – Guests will find shopping, dining and entertainment

Complimentary Internet in the guestrooms and complimentary parking

Warm cookie offered at check in.

AVIS Rental Car on site

Lift into the swimming pool and hot tub

How will I get to and from the events on Thursday and Friday?

Transportation will be provided to and from Children’s Hospital for Friday’s event. Transportation will only be picking up at the DoubleTree Hotel.

How will I be able to Live stream the Summit?

Streaming information will be added to this section a few days before the Summit.  Please register if you will be streaming the Summit as we need to have contact information of the participants. 

Have questions about KCNQ2 Denver Summit? Contact Scotty Sims and Jim Johnson

When & Where


DoubleTree Hotel and Children's Hospital Colorado

, CO

Thursday, September 18, 2014 at 1:00 PM - Friday, September 19, 2014 at 5:00 PM (MDT)


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Organizer

Scotty Sims and Jim Johnson

Scotty and Jim are hosting a Summit to help professionals and families like ours who are looking for a way to obtain information, connect with others, and bring awareness to KCNQ2 Encephalopathy.

  Contact the Organizer

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