CS Presents "H.A.R.D. Skin" Soft Launch @ Policy DC
Friday, June 29, 2012 from 6:00 PM to 9:00 PM (EDT)
In 2001, our dad was experiencing shortness of breath. He went to the doctor and was diagnosed with Scleroderma (which literally means "hard skin") of the lungs (essentially, they are turning to stone) as well as Reynaud's Syndrome (extremities are extremely sensitive and cold all the time) and Interstitial Lung Disease (ILD) (scar tissue progressively building up inside his lungs). 10 years later, he was also diagnosed with Pulmonary Hypertension (PH) (stresses the heart and lungs until eventual failure). Just 3 years ago, we were drinking, laughing, traveling and playing golf. He is now confined to his home where he is on oxygen 24/7 and can't do much of anything except watch tv. He is only 65.
Our mission is to raise awareness and money to help fund clinical trials related to Scleroderma, ILD, PH and Reynaud's. Our hope is to eventually find a cure for Scleroderma and save our dad.
Join us in honoring World Scleroderma Awareness Day and supporting the soft launch of our "HARD Skin" campaign. Food, Drink Specials, DJ, Entertainment, Giveaways and Prizes!
H.A.R.D. = (Hope for Autoimmune Rheumatic Diseases)
Please like us on Facebook. https://www.facebook.com/curescleroderma
Follow us on Twitter. https://twitter.com/#!/HARDskin1
Cure Scleroderma official website. www.curescleroderma.org
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