Fragile X Pre-mutation Carrier Education
- Health & Wellness
- Rush University Medical Center, Armour Academic Center, Chicago IL
2014 Fall Fragile X Education Workshop
8am-8:30 Check In
8:30-9:30 Fragile X 101 – Dr. Elizabeth Berry-Kravis
9:30-10 Transitions Birth- Elementary – Missy Zolecki
10:15- 12:15 Behavioral Strategies to use in the Classroom – Dr. Marcia Braden
12:15-1pm Lunch (provided)
1pm-1:30 Transitions Jr. High – Adulthood – Dr. Gail Harris-Schmidt
1:30-2:30 The Cognitive Profile: Using interests to teach to strengths – Dr. Marcia Braden
2:45 – 3:45 Hands on creation: An application of learning tools – Dr. Marcia Braden
3:45-4:30 Research/Medication Update – Dr. Elizabeth Berry-Kravis
Elizabeth Berry-Kravis MD, PhD: is an associate professor of pediatrics, neurology and biochemistry at Rush University Medical Center in Chicago. She is the Medical Director of the Fragile X Clinic and Research Program, and sees patients with fragile X syndrome for management of neurological, medical and behavioral issues as well as conducting investigational medication trials and other research aimed at understanding fragile X-associated disorders. Dr. Berry-Kravis co-directs the Molecular Diagnostics Laboratory at Rush, including Fragile X DNA analysis.
Marcia Braden, PhD: is a licensed psychologist with a specialty in children and adolescents. She consults with local school districts and trains staff in behavioral methodology and educational strategies. She has written and published numerous articles related to education and behavior management strategies, techniques and interventions. She is a member of the scientific and advisory committee for the National Fragile X Foundation.
Gail Harris-Schmidt, PhD: is a speech and language pathologist. She teaches at St. Xavier University and is the mom of two adult sons, one of whom has Fragile X Syndrome. She has consulted schools, written book chapters and articles about Fragile X Syndrome. She is the co-leader of the Greater Chicago Fragile X Group and a member of the scientific and clinical advisory committee for the National Fragile X Foundation.
Missy Zolecki, RN: is a registered nurse. She is the mom of 3 children, with her oldest son affected by Fragile X Syndrome. She has presented to local school districts, nursing students and at the International Fragile X Conference about Fragile X. She is the Central Region Leader for the National Fragile X Foundation and co-leader of the Greater Chicago Fragile X Group.
What are my parking options getting to the event?
Park in the North Parking Garage. The location is in the Education Building, 3rd floor Auditorium.
What can I bring to the event?
Please wear layers as the auditorium tends to be cool. Bring a pen and notebook to take notes. Printed handouts of the presentations will not be handed out. Please bring your charged laptop. You will be given a USB with templates and during the afternoon session with Dr. Braden you will be guided on how to utilize the templates.
Where can I contact the organizer with any questions?
Missy Zolecki: firstname.lastname@example.org or call 815-341-4995
What is the refund policy?
Refunds, minus a nominal processing fee are available until October 25, 2014. No refunds will be issued after October 25, 2014.
Will CPDU/CEU's be available?
6.75 CPDU's will be offered courtessy of NSSEO. Nursing CEU's are to be determined and the information will be updated as it is made available.
Will a Vegetarian Option be available for lunch?
Email Chicago@fragilex.org requesting a vegetarian lunch option by October 25.
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