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2014 FOD/OAA National Metabolic Conference

FOD Family Support Group and Organic Acidemia Association

Friday, July 25, 2014 at 8:00 AM - Saturday, July 26, 2014 at 5:00 PM (EDT)

2014 FOD/OAA National Metabolic Conference

Registration Information

Registration Type Sales End Price Fee Quantity
FOD Families
FOD Families - any family/family member or an affected adult that is living with a Fatty Oxidation Disorder or is still searching for a diagnosis
Ended Free $0.00
OAA Families
OAA Families - any family/family member or an affected adult that is living with an Organic Acidemia Disorder or is still searching for a diagnosis
Ended Free $0.00
Professionals
Medical Professionals (ie., Drs, Genetic Counselors, Dietitians, Nurses, etc) that are interested in learning more about Fatty Oxidation Disorders and Organic Acidemias
Ended $50.00 $0.00

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Event Details

2014 National FOD/OAA Metabolic Conference
July 25 - 26, 2014

REGISTRATION is NOW CLOSED!

Arlington, VA/Washington, DC

A draft agenda is posted on www.fodsupport.org and www.oaanews.org.

Our 2014 FOD/OAA National Metabolic Conference is for parents, family members, affected individuals, professionals and exhibitors that have an interest in Metabolic Disorders.

It is only through generous donations and sponsorships that the FOD Group and OAA are able to offer such an important opportunity every two years to Families and Professionals eager to learn more about our disorders. If you are interested in helping our efforts as a donor or a Conference Sponsor please refer to each Group's website linked above or contact Kathy Stagni directly at mkstagni@gmail.com or call 763.559.1797!

Fatty Oxidation Disorders and Organic Acidemias are a group of rare metabolic disorders whereby fatty acids and protein, respectively, cannot be broken down in the body to be used as energy, especially in times of fasting or illness, and are treated through dietary changes and medications.  When undiagnosed, severe medical complications and/or death can occur.

The importance of our Family Conference is to allow our members to meet other parents and professionals and learn more about their own or their child’s rare metabolic disorder. The focus for this conference is for Families to learn more about the medical management, nutrition and the social needs of caring for yourself or a child with a chronic disorder, specifically those with rare metabolic disorders. On Friday, we will have two separate sessions - one for the FOD Group and one for the OAA Group and there will be a Friday Night Reception from 6-9pm for Families and Speakers. Saturday we will meet in a joint session with Speakers addressing issues common to both Groups’ disorders.

The conference is a wonderful opportunity for Families to meet each other and have the opportunity to speak with professionals on an informal level. Children are encouraged to attend the Friday night Reception and we offer a variety of snacks and drinks during the Reception. Breakfast and Lunch are provided to all Registrants on both days of the conference.

***

There is NO registration fee for FOD/OAA Family participants for the 2014 Conference - but you will still need to complete a Registration Form for each member (age 5 and older) of your family/party attending! If you decide to register using the paper form on our websites, please mail the form to Deb Lee Gould, PO Box 54, Okemos, MI 48805. You can register up to 6 persons at one time. 

Professionals $50 per registrant (ie, Drs, Genetic counselors, Dietitians etc) - pay via a credit card. One main contact can register up to 4 colleagues. If you decide to register using the printed Registration Form on our websites, please mail the form and a check (made out to OAA) to Deb Lee Gould, PO Box 54, Okemos, MI 48805.

Booth Exhibitors do NOT register on this site. Please contact OAA Director Kathy Stagni (mkstagni@gmail.com) for booth fee amounts. All checks will be sent to Kathy Stagni (checks made out to OAA)  -   Kathy Stagni     13210 35th Ave North   Plymouth, MN 55441


*** ANYONE age 5 and older MUST be registered. All sitters MUST be registered.***

This is to provide advance accurate numbers for meal preparations.

Hotel Online Reservations:   Attendees are responsible for making their own hotel reservations.  Prices will be in effect 2 days before the conference dates of July 25 and 26, 2014.  If you have special requirements (e.g., refrigerator, microwave, crib, etc.) please put that in the NOTES section online or when you call call to make a reservation. No extra cost for refrigerators. Rooms start at $119 per night (plus tax) - this is the group discounted rate.

****Use the link below to book hotel rooms for this conference****

https://resweb.passkey.com/Resweb.do?mode=welcome_ei_new&eventID=10749619

Hotel info & Conference: 
Crystal Gateway Marriott
1700 Jefferson Davis Highway · Arlington, Virginia 22202 USA   

Hotel Phone Reservations: Reservations Toll Free: 877-212-5752
Reservations Local Phone: 1-506-474-2009
and state your reservation is for the FOD/OAA National Metabolic Conference to ensure you are billed at the reduced conference rate - starting at $119.00.  If you have special requirements (e.g., refrigerator, microwave, crib, etc.) please ask to reserve them. No extra cost for refrigerators.


Airport:  Crystal Gateway Marriott is @2 miles from Reagan National Airport (DCA) 

Airport shuttle service, scheduled, complimentary
Shuttle Phone: 1 703 417 8000
Courtesy phone available
Subway service, fee:  1.5 USD  (one way)
Estimated taxi fare: 10 USD  (one way)
Please check here for other airport and transportation information

Hotel Shuttle picks up from all Terminals at Reagan

Travel:  Attendees are responsible for their own travel accommodations to and from the conference.  Speakers will coordinate through Deb and Kathy for both hotel and travel arrangements.

Meals:  The hotel chef will be coordinating with us to provide a wide variety of food options for conference meals (Friday and Saturday Breakfast and Lunch and the Friday night Reception are for all Registered attendees ONLY) to include low-fat and low protein foods to accommodate our families' needs.  All other meals are your responsibility.  The online registration form will allow you to make a list of any special dietary requirements needed.  The hotel chef will make accommodations whenever possible.

Child Activity Room:  We will have an activity room for children - however, each family will be responsible for providing someone to supervise their child(ren) (e.g., grandparent/sitters) and those persons must also be registered.  We are also looking for local volunteers to help in the room by providing drawing activities, games, videos, etc.  Children are allowed in the conference sessions only IF they can do so quietly.  Disruptive, noisy children must be removed from the session as a courtesy to all other participants.  Older children and teens are encouraged to attend sessions - every child intending to dine at the conference meals (Friday and Saturday breakfast and lunch and Friday night reception) must be registered. ANYONE age 5 and older MUST register. All sitters MUST be registered.  This is to provide advance accurate numbers for meal preparations.

Registration Form:  Online or by mail (the regis form will be on www.fodsupport.org and www.oaanews.org) - Only Registrants will have access to our Conference Breakfast and Lunch on Friday and Saturday, as well as the Friday night Reception for Families, Professionals, Exhibitors, and Speakers.

Printed forms [and Professional checks made out to OAA] can be mailed to:
Deb Lee Gould/FOD Group
PO Box 54
Okemos, MI 48805

Have questions about 2014 FOD/OAA National Metabolic Conference? Contact FOD Family Support Group and Organic Acidemia Association

When & Where


Crystal Gateway Marriott
1700 Jefferson Davis Highway
Arlington, VA 22202

Friday, July 25, 2014 at 8:00 AM - Saturday, July 26, 2014 at 5:00 PM (EDT)


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Organizer

FOD Family Support Group and Organic Acidemia Association

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