Because the event on May 27th was such an amazing success, it has been decided that we make this the start of an incredible movement to spread awareness across the country! I hope that you will join us! make a difference and EB Part of the CURE!!
Epidermolysis Bullosa, EB, is a devastating disease that affects 1 in 50,000 live births. There are precious children who are forced to suffer each and every day. EB has forced them to go to battle everyday and to fi...ght to survive. The slightest amount of friction, even the softest of touches can cause severe and excruciatingly painful blisters. There is no cure. Many of these children do not make it to their first birthday and if they do survive, there days are spent bandaged from head to toe, full of constant pain and suffering the many complications that come with EB.
I am dedicated to raising awareness and being a voice for these children because I refuse. I refuse to wait for someone else to do something that I myself can do. I cannot stand to watch another child suffer when I have the ability to help make a change. I refuse...do you?
EB is the worst disease you never heard of and I want that to change...will you help me?
This year I ask each of you to refuse to wait for the change and instead be a part of the change.
Please join us at https://www.facebook.com/pages/EB-Part-of-the-Cure/119730184796534 to learn more about these precious children and to find ways you can help to EB part of the cure.